Covid-19 #MillionsMissing Update

The situation of COVID-19 is rapidly changing. We wanted to be optimistic that this situation would improve for the better, but even in the last 48 hours the situation has dramatically shifted. The WHO is officially classifying the virus a pandemic. COVID-19 is now affecting more than 127,000 people worldwide. 

We can’t in good conscience, continue with in-person #MillionsMissing events. We care about the health of you and every person that would have come to these events. We are still doing #MillionsMissing on May 12th. It will all be virtual. Our community has always had a strong, powerful, and supportive virtual presence. This event will be no different. 

We believe we can use this moment to build our virtual movement and community and come together in solidarity with all of the #MillionsMissing around the world. 

We have decided not to reschedule later in the year, because dates in the future are also uncertain, but this virtual event will be strong, supportive, and a time for our community to come together. A chance to be joyful and resilient in a time of uncertainty. 

We will be creating a form to share your ideas and brainstorm with us for our virtual #MillionsMissing as well as a link to RSVP and get updates. 

Moving forward, responding to Covid-19 coronavirus will remain a top priority for all staff and volunteers efforts until the situation is brought under control. #MEAction will continue to rapidly identify the tools, teams and resources we can bring together to support our community through this situation. Tomorrow, we will be sharing more information and a webpage dedicated towards Covid-19. 

In spite of all the challenges before us, once again, we believe the #MEAction community can use this moment to build our virtual movement and community and come together in solidarity with all of the #MillionsMissing around the world.

In solidarity,

Jen, Laurie, Ben, Erin, Jaime, Espe, Holly, Adriane and Hannah

Facebook
Twitter
WhatsApp
Email

Latest News

Facets of ME: Temperature Dysregulation

Welcome to June’s #FacetsOfME! Facets of ME is an educational feature where we dive into a particular aspect (or facet) of ME and explore it more in depth. This month we are focusing on temperature dysregulation- heat and cold intolerance. It is surprising how difficult this symptom can be to manage until you experience it.

Read More »

Dept. of Labor Updates Information on ME/CFS for Workers, Employers

The U.S. Department of Labor’s Office of Disability Employment Policy (ODEP) has updated the information on ME/CFS provided at its Job Accommodation Network website to align with the most current CDC guidance. This action will help workers and employers find accurate information on ME/CFS and combat stigma and improve workplace outcomes. At #MEAction’s recent meeting

Read More »

#MillionsMissing: 7 Days in Self Portraits with ME/CFS

After taking #MEAction’s photography workshop with photographer Lucia Doynel for #MillionsMissing, Terra Dumont produced these stunning photos as a glimpse into her life as someone living with ME/CFS. Terra spread this experience over 7 days, focusing on a different theme each day. See her wonderful work and accompanying commentary below. Click on any of the

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top