Day: June 5, 2019

We need Effective, Strategic, and Respectful Engagement from CDC

On June 3rd the CDC held its latest MECFS Stakeholder Engagement and Communication (SEC) Webinar/Conference Call with the ME community. The need for change in the CDC’s stakeholder engagement meetings has been a long time coming. However, this Monday, the majority of the call was a presentation comprised of simple lifestyle advice for ME, including

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Why #MEAction is Taking Action towards the CDC on Two Fronts

#MEAction has announced two CDC-related advocacy actions today and yesterday.  We are asking you to contact your Senators to increase research funding for ME through the Centers for Disease Control and Prevention (CDC), AND we have also published an open letter to the CDC calling them out for insufficient transparency and accountability in their regular

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