DePaul University is asking the patient population to fill out a survey to better understand the effects of post-exertional malaise (PEM) in people with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome.
The patient community aided in the development of this questionnaire to more accurately define and measure abnormal responses to physical and/or cognitive exertion.
“We are interested in knowing if you have an abnormal response to physical and/or cognitive exertion and as a result experience zero energy, feel sick, or your symptoms worsen. Some people call this a crash, exhaustion or post-exertional malaise (PEM),” writes DePaul’s Office of Research Services.
“The results will be published and will add to the research necessary to define post-exertional malaise and to further inform researchers of the seriousness of these illnesses.”
Please respond to the questions based on your average experiences over the last 6 months. If there is a question you do not want to answer, you may skip it. The survey is long, and may take 1-2 hours, but you can save your answers and return to the survey later.
The survey closes at the end of July.
[maxbutton id=”11″ url=”https://redcap.is.depaul.edu/surveys/?s=YJNCDPHXTH” text=”Start the Survey” ]
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4 thoughts on “Calling all Patients: Fill Out the Research Survey about PEM”
Where’s the link to the survey?
Here is the link to the survey: https://redcap.is.depaul.edu/surveys/?s=YJNCDPHXTH
Is there any way I could get a copy of the survey? I realized that this would be fantastic to give my answers to my MD to make her understand my problems – one being she took away my disabled parking permit so I would walk more…
Just emailed you about this.
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