DePaul University is asking the patient population to fill out a survey to better understand the effects of post-exertional malaise (PEM) in people with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome.
The patient community aided in the development of this questionnaire to more accurately define and measure abnormal responses to physical and/or cognitive exertion.
“We are interested in knowing if you have an abnormal response to physical and/or cognitive exertion and as a result experience zero energy, feel sick, or your symptoms worsen. Some people call this a crash, exhaustion or post-exertional malaise (PEM),” writes DePaul’s Office of Research Services.
“The results will be published and will add to the research necessary to define post-exertional malaise and to further inform researchers of the seriousness of these illnesses.”
Please respond to the questions based on your average experiences over the last 6 months. If there is a question you do not want to answer, you may skip it. The survey is long, and may take 1-2 hours, but you can save your answers and return to the survey later.
The survey closes at the end of July.
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Take the survey The ME/CFS Priority Setting Partnership (PSP) is giving you the opportunity to define your top ten priorities for future ME/CFS research. In partnership with the James Lind Alliance, the ME/CFS Priority Setting Partnership is launching their second survey today. The research questions in this survey are based on over 5300 ideas submitted