A new Danish study shows that ME patients have among the greatest levels of disability when compared to other common diseases:
[pullquote align=”full” cite=”” link=”” color=”#E7453A” class=”” size=””]ME/CFS has the lowest health-related quality of life score when compared to cancer, diabetes, lupus, stroke, heart disease and chronic renal failure.[/pullquote]
The study surveyed 105 patients. 27% of ME patients surveyed live with severe pain everyday. Only 4% of the general population is afflicted with severe pain and 20% with moderate pain.
The EQ-5D-3L is one of the more prominent scales that are used to measure quality of life. It ranges from -0.624 to 1.000 (1 being the best and -0.624 being the worst).
ME scores as -0.29 making it approximately 15 times worse than cancer and two times worse than having a stroke.
[button_color url=”http://paperity.org/p/73597499/the-health-related-quality-of-life-for-patients-with-myalgic-encephalomyelitis-chronic” content=”Read the full study” target=”]
Sign petition To Fix ME/CFS tracking In US!
September 13, 2021
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In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the
2 thoughts on “ME patients have among the poorest quality of life”
Pity government assessors for benefits dont recognise our pain and limitations….
Please consider joining active with invisible illness on Facebook for an up date on the progress of forming a group to join and help all people with invisible illnesses. The websites will be aii2.co and onekindvoice.com for support help and action. Uniting all victims of any invisible illness to get each recognised, supporting each other and empowering people to help improve their quality of life.