I was led to believe there was ‘no future’ with with my diagnosis. Well, I beg to differ.

I have learned to cope with M.E., a serious and potentially disabling chronic disorder, through art and creativity.

Excerpted from The Journal.ie
I remember reading articles on M.E. Awareness Day within the first year of being diagnosed with this debilitating illness.
It was a story about somebody who had this condition for five years. I couldn’t imagine what that would be like. It scared me, to be honest. I didn’t want to hear it. I didn’t want to know about it. I made a drawing: hands covering my ears so not to hear the reality of this very little-understood condition.
I became determined to beat this illness and be recovered within a year, maximum two.
That was 17 years ago.
I am still ill.
M.E. is a serious and potentially disabling chronic physical disorder, affecting up to 12,000 people in Ireland. Of that number, approximately 25% of those would be considered to be severely disabled, rendering them housebound and even bedbound and leaving the individual dependent upon carers for their everyday needs.
 
Read the full article on The Journal.ie

Facebook
Twitter
WhatsApp
Email

Latest News

Facets of ME: Temperature Dysregulation

Welcome to June’s #FacetsOfME! Facets of ME is an educational feature where we dive into a particular aspect (or facet) of ME and explore it more in depth. This month we are focusing on temperature dysregulation- heat and cold intolerance. It is surprising how difficult this symptom can be to manage until you experience it.

Read More »

Dept. of Labor Updates Information on ME/CFS for Workers, Employers

The U.S. Department of Labor’s Office of Disability Employment Policy (ODEP) has updated the information on ME/CFS provided at its Job Accommodation Network website to align with the most current CDC guidance. This action will help workers and employers find accurate information on ME/CFS and combat stigma and improve workplace outcomes. At #MEAction’s recent meeting

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top