I was led to believe there was ‘no future’ with with my diagnosis. Well, I beg to differ.

I have learned to cope with M.E., a serious and potentially disabling chronic disorder, through art and creativity.

Excerpted from The Journal.ie
I remember reading articles on M.E. Awareness Day within the first year of being diagnosed with this debilitating illness.
It was a story about somebody who had this condition for five years. I couldn’t imagine what that would be like. It scared me, to be honest. I didn’t want to hear it. I didn’t want to know about it. I made a drawing: hands covering my ears so not to hear the reality of this very little-understood condition.
I became determined to beat this illness and be recovered within a year, maximum two.
That was 17 years ago.
I am still ill.
M.E. is a serious and potentially disabling chronic physical disorder, affecting up to 12,000 people in Ireland. Of that number, approximately 25% of those would be considered to be severely disabled, rendering them housebound and even bedbound and leaving the individual dependent upon carers for their everyday needs.
 
Read the full article on The Journal.ie

Facebook
Twitter
WhatsApp
Email

Latest News

rectangle image with a greyish background. three white pillows stacked from smallest to largest. the words, Pillow Writers en Español in black font. the #MEAction logo in the bottom right corner.

Pillow Writers en Español

#MEAction is thrilled to announce Pillow Writers Network has expanded once again! This time with a dedicated group for Spanish speakers: Join us for our Pillow Writers En Español meetings! A place where ME/CFS/Long Covid patients are welcome to participate through writing. This #MEAction-sponsored event has been held in English for over three years. We

Read More »

Happy Juneteenth + Black Disabled Authors Reading List

Happy Juneteenth from all of us here at #MEAction! Juneteenth commemorates June 19th, 1865 when slavery of African-Americans was officially enforced. To celebrate we have put together a summer reading list of books by disabled Black authors. Keah Brown is an American author who was born with cerebral palsy. She created the popular hashtag #disabledandcute

Read More »
white rectangle with red splashes of tiny red dots in all four corners. #MEAction logo at the top. #MEAction Minnesota Helps Save Long Covid Program in red font.

Minnesota’s Long COVID Funding Saved from Elimination

We have good news! The first-in-the-nation Long COVID program run by the Minnesota Department of Health (MDH) has been saved from elimination! This means #MEAction will be able to continue its work helping Minnesotans with ME/CFS, Long COVID and related conditions access vital home and community-based support services, as part of our multi-year grant.   Last

Read More »
Scroll to Top