Are you a caregiver (spouse, partner, sibling, parent) of someone with Myalgic Encephalomyelitis? Are you looking for a community of support, or ways to get involved in advocating for people with ME? #MEAction is excited to announce the launch of a new support network dedicated to caregivers. Please join us for our first caregivers call
As was previously reported by #MEAction, Dr Sarah Myhill has made a formal complaint to the General Medical Council (GMC) about the authors of the PACE trial. In addition to asking people to write to the Chairman of the GMC, she has now set up an online petition which people can sign if they wish
Listen to MEAction volunteers on Radio Scotland! Available as an MP3 (7Mb) or stream via BBC iPlayer (starts at 36.23) On 14th of February 2018, my mum (Janet) and I were on Radio Scotland to discuss #MEAction’s Millions Missing campaign in Scotland. The piece was instigated after the Millions Missing Time for Unrest event at the
Science for ME is our major new ME/CFS internet forum with a focus on community, support, advocacy – and, at the heart of it all, science. The forum opened this October and has already attracted over 500 members, with over 25,000 messages on more than 1,400 threads.
Once upon a time, I woke up on fire. This burning was one of invisible flames, curling themselves around me and offering nothing but excruciating pain and the sort of exhaustion which bears down on you like a weight your whole body must carry.
ME advocate Mary Dimmock has written a comprehensive report about the flawed science that led to the recommendation of cognitive behavioral therapy (CBT) and graded exercise therapy (GET) for people with Myalgic Encephalomyelitis. The patient community has long reported these treatments to be ineffective and harmful, and, yet, health societies and governments across the world
The American ME and CFS Society is live, and we need your participation!
The Solve ME/CFS Initiative (SMCI) held its second annual Discovery Forum Saturday October 14. The forum dubbed “a new era in ME/CFS research” brought together leaders from academia, government agencies, private clinics, biotech and research institutions to discuss developments in the field of ME/CFS research.
Open Medicine Foundation (OMF) president, Linda Tannenbaum, will give a special lecture on the state of ME/CFS research at Newton-Wellesley Hospital in Boston, MA, on Saturday, November 4, 2017 from 1:00 to 3:30 pm. The event is sponsored by the Massachusetts CFIDS/ME & FM Association. Open Medicine Foundation® (OMF) is the leading research organization working to end ME/CFS and related chronic complex diseases.
Keep up-to-date on this issue by following the Twitter accounts @mecvsnieuws and @ME_gids More than 10,400 signatures for the Dutch petition ‘ME is not MU(P)S’ (Medically Unexplained (Physical) Symptoms) was presented to Prof. van Gool, president of the Dutch Health Council three weeks ago on September 18th. The petition aims to hold the Dutch Health Council
