Join our Support Group for Caregivers

Share on facebook
Share on twitter
Share on email

Are you a caregiver (spouse, partner, sibling, parent) of someone with Myalgic Encephalomyelitis? Are you looking for a community of support, or ways to get involved in advocating for people with ME?
#MEAction is excited to announce the launch of a new support network dedicated to caregivers.  Please join us for our first caregivers call this Saturday, 24 March.
New York: 4 p.m.
California: 1 p.m.
London: 8 p.m.
Melbourne: 7 a.m.
[button_color url=”https://my.meaction.net/events/meaction-caregiver-support-call” content=”RSVP here” target=””]  
This is the first of a series of calls dedicated to caregivers where will discuss topics important to caregivers. Examples include: How to care for our loved ones with ME when we are gone (e.g. special needs trusts, the Able Act, etc.)
We are only encouraging caregivers to attend the call, and welcome patients to get involved through our other support groups.
Before the call, please think about these questions:

  • What are two needs caregivers have? (example – estate planning resources, socializing)
  • What are two things you do to care for yourself? (listen to music, savor a drink)

Three mothers of grown children have banded together to create the support group: Bobbi Ausubel, whose 56-year-old daughter has been sick for 28 years; Denise Lopez-Majano, whose two young adult sons are housebound with ME, having developed the disease at ages 12 and 15; and, Jane, who is the mother of a 30-year-old daughter who was stricken with ME while in college.
“We – Jane, Bobbi and Denise, the call organizers – know firsthand how isolating and all encompassing ME caregiving can be.
We want to help change that by providing support and resources for ME caregivers and helping caregivers connect with each other and the ME community.
We look forward to talking with you soon!”
– Jane, Bobbi and Denise
~

Join the Facebook Group

Also, join the Facebook group for caregivers here.  The Facebook Group is a space for caregivers and family members to support one another through tough times, to discuss situations and issues, to collaborate, create and (maybe) take action. 
(We are respectfully limiting this group to caregivers only – we welcome patients to join our other support groups.)
 

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on google
Google+
Share on email
Email

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

Waiting for Superman Book on table

Waiting for Superman – UK Book Giveaway and Review

Do you want to win a free copy of Waiting for Superman? We have three copies to give away to people in the UK!  To enter, all you have to do is follow #MEAction UK on Instagram, like and comment on this post. The deadline is 9am (GMT) Monday 8th March! Win a copy! Thank

Read More »
#MEAction activists outside Scottish Parliament

Scottish Election! Ask your MSPs to support people with ME

If you live in Scotland, please join our campaign to ask your MSPs to pledge their support for people with ME. Email your MSPs The Holyrood elections are coming up on 6 May 2021 and we want to make sure that MSPs are aware of ME and the desperate need for support. There are more

Read More »
Terri Wilder - #MEAction Activist Camp

#MEAction’s ACTIVIST CAMP! – the Highlights!

It’s a wrap! Last weekend concluded the final session #MEAction’s first ever ACTIVIST CAMP!, a teach-in series for activists in the United States. We are so proud of this program and what it has accomplished. Congrats to our new grads!  #MEAction ACTIVIST CAMP! aimed to deepen our campers’ engagement with activism – teaching our collective

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top