ME/CFS Research Roadmap: Our Fight on The Hill Continues
- #MEAction
- 22 hours ago
- 2 min read
Senate to Discuss Funding ME/CFS Research Roadmap - Here’s how you can help!
#MEAction has been fighting to fund the ME/CFS Research Roadmap from two angles - advocating for $50 million in appropriations from Congress, and working to secure direct funding from the Office of the Director at the NIH.
Over the summer, we’ve met with key Members of the Labor-HHS subcommittee who still have the power to include the ME/CFS Research Roadmap in next year’s budget! That subcommittee is expected to discuss appropriations in the upcoming weeks, and we’ve had a promise from key Members that the full committee will discuss our request for $50 million in appropriations for the Roadmap!
Do you live in Maine or West Virginia? We need your help!
The two Senators that have the most power to make this happen are Senator Collins and Senator Capito. Please take a moment to call your Senator and ask them to appropriate funding for the ME/CFS Research Roadmap! Use our easy call script, below. Do you know someone who lives in Maine or West Virginia? Please send them the call and email script and ask them to contact Collins and Capito!
Read About Our Work in the News:
The Sick Times recently reported on the work that #MEAction, Long COVID Campaign and #NotJustFatigue are doing to push for massive increases in research funding for these diseases.
“If Congress funds a program in one year’s appropriations bill, it sets a good precedent for the future,” she #MEAction Executive Director, Laurie Jones. “After funding passes for one year, it will be less of a battle to at least maintain funding or even increase it in upcoming years.”
Securing Funding from the NIH Director
We are simultaneously pursuing funding directly from the NIH’s Office of the Director. We have sent several letters to the two recent NIH directors, and are coordinating with the Office of the Director to discuss next steps.
We have made so many inroads into getting the ME/CFS Research Roadmap funded, and we will keep on advocating on every fronts until this is a reality.
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