In just six months, #MEAction has taken on some of the biggest issues facing people with ME and Long COVID. A small, dedicated staff, an extraordinary group of volunteers, and generous donors like you have gotten us here. I want to take a moment to tell you what we have accomplished together, because celebrating our collective work is important. We Showed Up Around the World This year, the #MillionsMissing campaign was amplified globally. From Brazil to France, the UK to Mex

Submit your work and join us for this year's Severe ME Artists Project!

Two caregivers share their insights from decades of caregiving for spouse, children, mother, teens and adult children with ME

Stuart Murdoch, frontman of Belle and Sebastian, invites you to join him in a guided meditation. Through his own journey with ME, Stuart has discovered how meditation can calm and support the nervous system. #MEAction is deeply grateful to Stuart for sharing his time and talents to uplift the ME community. We encourage you to take a moment to listen and follow along with his meditation. Please adapt the practice in whatever way feels right for you.

MEAction UK is now officially an independent UK registered charity

This year has been hard- we know because we have been on the ground fighting for ME and Long COVID every single day. In 2025, #MEAction has accomplished a lot. Just take a look below.1. Advocating for funding for the ME/CFS Research Roadmap: Secured a meeting with the NIH Director, and got the roadmap included in Congress’ draft appropriations language.2. Helping Minnesotans with ME/CFS and Long COVID apply for home care support by launching the Minnesota Home Help Navigation

We are excited to share some promising updates about the scientific work #MEAction is leading to advance the field of ME/CFS research.

Learn more about this year’s project

#MEAction is thrilled to announce Pillow Writers Network has expanded once again! This time with a dedicated group for Spanish speakers.

Stuart Murdoch (Belle and Sabastian) will be interviewed by #MEAction Minnesota’s leader, Terri L Wilder, about his recently released novel, Nobody’s Empire.

Today is Long COVID Awareness day, and we want to lift up the importance of Long COVID advocacy. We ask you to share this video created by #MEAction volunteers today.

Experience the Pillow Crafters Showcase: Healing Themes—The Wildflower Process, a showcase of resilience, creativity, and the many ways we reclaim our identities after an ME/CFS diagnosis.

#MEAction acknowledges and celebrates the amazing women in our community.

Join #MEAction for a heart-filled, very modified movement class of the year on Friday, February 14th at 11am PST/2pm EST/7pm GMT.

Over the past year, the #NotJustFatigue website released a 10-part, documentary-style, short-form video series on different aspects involved in living with ME.

When challenges come our way, this community has shown us over and over again that we are stronger together.

We have come to the time of year where we focus on what we are thankful for and what has made a difference in our lives.

Join #MEAction for our final very modified movement class of the year on Friday, November 15th at 11am PST/2pm EST/7pm GMT.

#MEAction is sending an urgent letter to NIH Director, Dr. Monica Bertagnolli, demanding that the NIH fund the ME/CFS Research Roadmap.

The Severe ME Artists Project is back for 2024! Submissions are now open until July 25th.