This year has been hard- we know because we have been on the ground fighting for ME and Long COVID every single day. In 2025, #MEAction has accomplished a lot. Just take a look below.1. Advocating for funding for the ME/CFS Research Roadmap: Secured a meeting with the NIH Director, and got the roadmap included in Congress’ draft appropriations language.2. Helping Minnesotans with ME/CFS and Long COVID apply for home care support by launching the Minnesota Home Help Navigation

We are excited to share some promising updates about the scientific work #MEAction is leading to advance the field of ME/CFS research.

Learn more about this year’s project

#MEAction is thrilled to announce Pillow Writers Network has expanded once again! This time with a dedicated group for Spanish speakers.

Stuart Murdoch (Belle and Sabastian) will be interviewed by #MEAction Minnesota’s leader, Terri L Wilder, about his recently released novel, Nobody’s Empire.

Today is Long COVID Awareness day, and we want to lift up the importance of Long COVID advocacy. We ask you to share this video created by #MEAction volunteers today.

Experience the Pillow Crafters Showcase: Healing Themes—The Wildflower Process, a showcase of resilience, creativity, and the many ways we reclaim our identities after an ME/CFS diagnosis.

#MEAction acknowledges and celebrates the amazing women in our community.

Join #MEAction for a heart-filled, very modified movement class of the year on Friday, February 14th at 11am PST/2pm EST/7pm GMT.

Over the past year, the #NotJustFatigue website released a 10-part, documentary-style, short-form video series on different aspects involved in living with ME.

When challenges come our way, this community has shown us over and over again that we are stronger together.

We have come to the time of year where we focus on what we are thankful for and what has made a difference in our lives.

Join #MEAction for our final very modified movement class of the year on Friday, November 15th at 11am PST/2pm EST/7pm GMT.

#MEAction is sending an urgent letter to NIH Director, Dr. Monica Bertagnolli, demanding that the NIH fund the ME/CFS Research Roadmap.

The Severe ME Artists Project is back for 2024! Submissions are now open until July 25th.

In honor of Pride Month, #MEAction is sharing a heartfelt message from our board member, Jennifer England.

We are THRILLED to share the successes of our #TeachMETreatME campaign as we report back on the medical education events that have taken place so far.

#MEAction is once again thrilled to share a new book, Invisible Illness: Coming of Age, Chronic Illness, and a Mother's Will to Survive, with you by author Lauren Saikkonen! This book is an autobiography that covers Lauren’s entire life, but heavily focuses on her battle with Ehlers-Danlos syndrome, ME, and fibromyalgia. You can purchase this book on Amazon-- get a copy here! Lauren has graciously offered to donate a portion of her proceeds to #MEAction for all books purchase

#MEAction is excited to announce community member, Elizabeth Ansell, created a new website, #NotJustFatigue, launching today, March 1, 2024! This website was created with the hopes it will help describe ME to those who do not know anything about ME. It is a site for people to share with their family and friends. #MEAction is listed on the website as an organization for people to support financially for ongoing research and advocacy.Elizabeth provided us with a short interview

As many of you know, we lost a wonderful person recently. Beth Mazur passed away after battling ME for 15 years. She was the cofounder of #MEAction and a selfless beacon of hope and light for so many in our community. She demonstrated an unwavering commitment to the cause. We could not be more devastated. Beth put her whole self into the fight for equity for people with ME. Every person with ME mattered more to Beth than you will ever know. We join the family in inviting you