NEWS

MEAction is working with The Library of Congress to educate libraries about ME and Long COVID.

Happy Election Day! We hope everyone is exercising their right to vote today (or that you voted early)! While folks were out and about on election day, MEAction North Carolina took the opportunity to ask North Carolinians to submit a public comment on Medicaid and set up a symbolic bed as the first stop on our Pace to the Capitol campaign.Join the Campaign! This is just our first stop on our Pace to the Capitol campaign. We will have many more state and local actions, upcomin

CMS’s narrow “medically frail” definition blocked

Pace, not a race: find your way to take action for the ME community. Hundreds have registered for Pace to the Capitol. Join us before May 12th!

November is National Family Caregivers Month in U.S.

From your bed, your community, or DC, help us bring ME and Long COVID out of the shadows. Join the campaign today.

State Medicaid leaders are listening. Here’s what we’ve won so far, and what comes next.

The National Institute of Allergy and Infectious Diseases (NIAID), has released a proposal to eliminate its Division of Clinical Research (DCR) and move the division’s programs and responsibilities into other parts of the Institute.DCR brings together many of the services needed to conduct safe, effective clinical research. These include clinical research operations, statistics, regulatory oversight, domestic and international partnerships, and the ability to respond quickly

Graduate researchers at Canadian universities will lead studies using #MEAction’s dataset.

Senate to Discuss Funding ME/CFS Research Roadmap - Here’s how you can help!#MEAction has been fighting to fund the ME/CFS Research Roadmap from two angles - advocating for $50 million in appropriations from Congress, and working to secure direct funding from the Office of the Director at the NIH. Over the summer, we’ve met with key Members of the Labor-HHS subcommittee who still have the power to include the ME/CFS Research Roadmap in next year’s budget! That subcommittee is

#MEAction is proud to share the Severe ME Artists Project 2026-check out the video & gallery!

More than 79,000 comments were submitted—and every one must be reviewed by CMS.

As Severe ME Awareness Month begins, we hold space for the 25% living with severe ME, plus new art, a community webinar, and a reminder to care for yourself.

#MEAction has submitted its official public comment to the Centers for Medicare and Medicaid Services (CMS) about their new Medicaid work requirements regulations. There are just a few more days for you to submit your own public comment before the deadline at 11:59pm EST on Friday, July 31st. You don’t need to be a policy expert to make your voice heard. Use our easy template to share your story. Please support our work to help us continue the fight to recognize ME and Long C

This has been a remarkable month for #MEAction and I wanted to share the news directly with you.We are closer than ever to getting the ME/CFS Research Roadmap funded.Building on the Congressional relationships we developed in May through our partnership with #NotJustFatigue, #MEAction met with six offices of members of the Labor-HHS Appropriations Subcommittee over the last two weeks to request $50 million in dedicated funding for the ME/CFS Research Roadmap. We have received

25+ advocates join a complaint against Wired. Add Your name to the petition.

Funded by the Whittemore Peterson Institute (WPI) and Mayo Clinic, the project will develop the first nationally applicable clinical guidelines for emergency department care of ME/CFS and Long COVID patients

Juneteenth is a moment to celebrate freedom and reckon honestly with who that freedom has and has not reached. For the ME and Long COVID community, that reckoning is personal.

People with ME and Long Covid should be exempt from work requirements, period. Join our fight.

Submit your work and join us for this year's Severe ME Artists Project!