Good news: Congress has extended Telehealth until January 31,2026 as part of a deal to end the government shutdown.This is not a permanent solution. So, we must continue to put pressure on Congress to make telehealth for Medicare permanent. Join #MEAction in putting pressure on Congress to make Telehealth for Medicare permanent! Call your Member now using our call script, and tell Congress to stop messing around with your healthcare!For people with ME and Long COVID, Teleheal

#MEAction is thinking of our community during these unpredictable times.You’re doing your best. Reaching out for help takes courage and vulnerability. You deserve to feed yourself and anyone you care for with dignity. Finding help isn’t charity. It’s survival, community, and resilience.Here are some resources to help keep your fridge stocked: Call 2-1-1 (just dial 211) for your zip code — they’re a free hotline linking to local food pantries, soup kitchens, and emergency food

This year has been hard- we know because we have been on the ground fighting for ME and Long COVID every single day. In 2025, #MEAction has accomplished a lot. Just take a look below.1. Advocating for funding for the ME/CFS Research Roadmap: Secured a meeting with the NIH Director, and got the roadmap included in Congress’ draft appropriations language.2. Helping Minnesotans with ME/CFS and Long COVID apply for home care support by launching the Minnesota Home Help Navigation

Join our social media campaign to advocate for Medicaid and ACA.

Summary review of the recent RECOVER TLC Workshop

The launch of the Minnesota Home Help Navigation Program is proof that advocacy works.

With the Minnesota Home Help Navigation Program now underway, here’s an inside look at the strategic choices in our patient-led playbook.

Pilot program offers free support for Minnesotans with energy-limiting illness

Meet #MEAction’s Newest Staff Member- Linda Pozen

#MEAction has been working hard with #NotJustFatigue to advocate for the ME/CFS Research Roadmap and it has paid off! The Senate Appropriations Committee included the roadmap in their report!

The sole Long COVID clinic of North Carolina closed last week after its federal funding ran out.

In celebration of Juneteenth, we have put together a list of books by disabled Black authors.

The Minnesota Department of Health's Long COVID program has been saved from elimination!

Sick and disabled people are protesting today, Monday, May 12th at the Capitol to tell Congress that forcing chronically ill people to work in order to keep their Medicaid healthcare will only make our country sicker and more reliant on government services. 

We cannot allow our elected officials to harm chronically ill and disabled people with rampant cuts. This is yet another SOS moment for people in our community.

We reached 7,000 signatures on our last letter. This time, our goal is 10,000. Please sign the letter today and share it with your friends and family.

Share this message about #MillionsMissing with your own networks.

#MEAction has been hard at work connecting individuals to their elected officials to talk about the ME/CFS Research Roadmap, Medicaid, and telehealth.

#MEAction Georgia's Maggie Boxey gave a TEDx talk about her experience as a person with ME.

On May 12th, we're sending out an SOS to Congress to Save our Support Systems, our Science, and our Society.