NEWS

Senate to Discuss Funding ME/CFS Research Roadmap - Here’s how you can help!#MEAction has been fighting to fund the ME/CFS Research Roadmap from two angles - advocating for $50 million in appropriations from Congress, and working to secure direct funding from the Office of the Director at the NIH. Over the summer, we’ve met with key Members of the Labor-HHS subcommittee who still have the power to include the ME/CFS Research Roadmap in next year’s budget! That subcommittee is

More than 79,000 comments were submitted—and every one must be reviewed by CMS.

This has been a remarkable month for #MEAction and I wanted to share the news directly with you.We are closer than ever to getting the ME/CFS Research Roadmap funded.Building on the Congressional relationships we developed in May through our partnership with #NotJustFatigue, #MEAction met with six offices of members of the Labor-HHS Appropriations Subcommittee over the last two weeks to request $50 million in dedicated funding for the ME/CFS Research Roadmap. We have received

Medicaid work requirements exemptions are being restricted

We built key relationships to protect Medicaid for ME and Long COVID. Now we need your help to keep going.

On May 12th, the ME/CFS and Long COVID community are gathering outside the Department of Health and Human Services to call on HHS policymakers to intervene before tens of thousands of people with the debilitating diseases of ME/CFS and Long COVID lose access to the healthcare they need to survive.

Give today and your donation will be matched up to $15K!

Join our fight to protect Medicaid for our community!

Fury and hope can coexist. Here’s why we believe this is the year everything changes for people with ME.

#MEAction is fighting to protect your Medicaid access. We’re taking action in 42 states and at the federal level to ensure ME/CFS and Long COVID are recognized and protected.

We have NEWS to share about funding for the ME/CFS Research Roadmap - the NIH’s most comprehensive, strategic plan for ME/CFS research to-date.

This year’s Advocacy Week will focus on medical education.

#MEAction joined a Maryland bill hearing to support House Bill 27 (HB 27), a proposal that would create a Maryland Long COVID Research Fund and establish a Long COVID Innovation Grant and Loan Program through the Maryland Technology Development Corporation (TEDCO).

Where we spend money reflects what we value. From ME research funding to Medicaid cuts, here’s why we’re speaking out, and how you can help.

Like you, we have been watching horrors unfold especially in Minnesota. We have been checking on our #MEAction Minnesota community and sending all our love and support. This situation is heartbreaking and sickening. We’ve heard your requests to find ways to help, so we’ve created a campaign with disability activist partners so you can contact congress, sign an open letter, and share on social media. We also highlight resources and groups on the ground that you can support. IC

#MEAction and three Long COVID organizations published a statement today urging Congress to support bipartisan legislation to establish a national task force to investigate the COVID-19 outbreak. Our organizations have also signed onto Marked By Covid’s open letter to Congress calling for the bill’s passage. Together, we are urging Congress to hold our federal health and research agencies accountable for their abject failure to be prepared for the Long COVID and ME/CFS crisis

Reflections from the World AIDS Day protest at the White House Protest

AIDS, ME/CFS & Long COVID activists demand Biden, Congress fund pandemic plans

White House Must Confront Global Health Nightmare of Colliding Pandemics

BOLD ACTION to me, means mobilizing our community to publicly demonstrate our deep and intense—as opposed to shallow and passive—commitment to seeing healthcare justice for people with ME. It is about bringing our issues to the forefront of public consciousness and putting strong pressure on our leaders to act. Taking BOLD ACTION is both a pragmatic tactical tool for building the people-based power of our movement, and it is the vivid demonstration of the too-long hidden cris