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Parliament EDM 271 Urges NICE to Update Guideline on ME
UPDATE On 20th September, NICE overturned the original proposal and announced it would review its guideline on ME. This is great news but means we need to double our efforts to make sure that the new guideline is robust enough to protect and help people with ME for generations to come. We still need you
#MEACTION REJECTS SMILE TRIAL OF THE LIGHTNING PROCESS FOR CHRONIC FATIGUE SYNDROME
FOR IMMEDIATE RELEASE: 21/09/17 CONTACT: [email protected] #MEAction Rejects the Findings of the SMILE Trial of The Lightning Process for Chronic Fatigue Syndrome Trial Uses Flawed Methodology That Can Lead To False Positives Following the release of the results of the SMILE trial, Ben HsuBorger of ME Action said: “The SMILE trial of the Lightning Process, a
Urge your MP to sign EDM 271!
We need your help for parliament to recognise the strength of feeling about NICE guideline review
FITNET trial criticised in Behavioural Sciences journal
Severe ME patients publish paper questioning central findings of Dutch CBT/GET trial
THE PACE TRIAL: THE MAKING OF A MEDICAL SCANDAL
Journal of Health Psychology Special Issue on The PACE Trial, Vol. 22, No 9, Aug. 2017 Publication date: 31 July 2017 http://journals.sagepub.com/toc/hpqa/current A Special Issue of the Journal of Health Psychology on the PACE Trial, is to be published and freely available online on Monday 31 July 2017. It marks a special contribution of
#MEAction UK response to NICE 2017
#MEAction UK response to NICE 2017 Background information UK clinical guidelines are written by a body called the National Institute for Health and Clinical Excellence (NICE). The current guidelines were last revised in 2007 and contain recommendations that people with ME consider unsuitable and potentially harmful. These guidelines also impact how ME is perceived in
Action for M.E announces research
UK charity Action for M.E has announced that they are funding two new research studies, totalling £42,000
Troubled by NICE guidelines? Three easy ways you can help
When you go to the doctor, you expect treatment to help, not harm you. But the NICE (NHS) guidelines for ME/CFS only recommend two main therapies for ME: Graded Exercise Therapy (GET – which asks you to gradually increase your exercise each week, ignoring any worsening symptoms) and Cognitive Behavioural Therapy (CBT). The majority of
Write to Your MP in 5 Minutes about the ME/CFS NICE Guidelines
The NHS’ NICE guidelines are badly out of date, and only offer two main treatments: Graded Exercise Therapy and Cognitive Behavioural Therapy. We’ve just heard that NICE, despite being due for a revision this year, are intending not to revise the guidelines after all. This is worrying for all patients who have been harmed
#MEAction Network UK: FITNET letter published in Positive Health Online
#MEAction Network UK’s statement denouncing CBT as a form of treatment for ME has been published in the January edition of Positive Health Online today. The letter was sent in response to FITNET, a controversial study that purported children and young people with ME could be successfully treated through CBT conducted over the internet. Esther
The PACE trial: Where “recovery” doesn’t mean getting your health back
Do people really recover as a result of CBT and graded exercise? Sadly not, says a new analysis of PACE People with ME/CFS dream of recovery — of getting their health and lives back. So the results published by the PACE trial, showing that 22% of participants recovered after just 12 months of CBT or
#MEAction Network UK's polling results for the proposed MEGA study
Last week, we asked for your thoughts on the proposed MEGA study. The poll ran for 5 days and 154 of you lent your voice to the concerns raised by many. Here are the results of the vote: “The study must include severely and moderately affected patients.” 140 of 154 voted this. (90.9%) “Those researchers/advisors