NEWS

ME awareness month is here. Here's how to show up (at whatever battery level you have).

Join our fight to protect Medicaid for our community!

Fury and hope can coexist. Here’s why we believe this is the year everything changes for people with ME.

#MEAction and NIH Director to Discuss Funding for ME/CFS Research Roadmap

Our year-long campaign to protect Medicaid for people with myalgic encephalomyelitis (ME) and Long COVID continues! We are pleased to share that our Advocacy Director, Ben HsuBorger, will be joining a national webinar to discuss how the H.R.1 funding bill passed by Congress last year (commonly known as the One Big Beautiful Bill) will affect disability communities. The Grassroots Project, which supports disability grassroots advocacy, networking, and leadership development,

#MEAction has been working hard with #NotJustFatigue to advocate for the ME/CFS Research Roadmap and it has paid off! The Senate Appropriations Committee included the roadmap in their report!

We cannot allow our elected officials to harm chronically ill and disabled people with rampant cuts. This is yet another SOS moment for people in our community.

We reached 7,000 signatures on our last letter. This time, our goal is 10,000. Please sign the letter today and share it with your friends and family.

Share this message about #MillionsMissing with your own networks.

#MEAction Scotland will be outside Scottish Parliament in Edinburgh on Wednesday 14th May, from 12–2pm, calling on the Scottish Government to act on its promises.

#MEAction has been hard at work connecting individuals to their elected officials to talk about the ME/CFS Research Roadmap, Medicaid, and telehealth.

It’s time to send out our SOS signal if we want to have funded research.

On May 12th, we're sending out an SOS to Congress to Save our Support Systems, our Science, and our Society.

For #MillionsMissing 2025, #MEAction is sending out an SOS.

The White House has abruptly announced that it is terminating funding for NIH RECOVER grants studying Long COVID, effectively stopping 45 studies that were almost complete.

Read the statement from Ian Simon, the head of the Long COVID Office at Department of Health and Human Services.

#MEAction acknowledges and celebrates the amazing women in our community.

As we embark on the new year, we are excited to share updates about #MEAction’s advocacy projects and community programs with you!

Back in September, #MEAction Georgia partnered with the CDC and Emory School of Nursing to host Voice of the Patient: A Panel Discussion with #MEAction Georgia.

This global #MEAction initiative aims to raise awareness among medical professionals of the challenges faced by ME/CFS and emphasise the need for healthcare education about this condition.