#MEAction Joins National Webinar: Impacts of H.R.1 on Disability Communities

Our year-long campaign to protect Medicaid for people with myalgic encephalomyelitis (ME) and Long COVID continues! 

We are pleased to share that our Advocacy Director, Ben HsuBorger, will be joining a national webinar to discuss how the H.R.1 funding bill passed by Congress last year (commonly known as the One Big Beautiful Bill) will affect disability communities.  

The Grassroots Project, which supports disability grassroots advocacy, networking, and leadership development, is hosting the one-hour overview of H.R. 1, focused on how the legislation pertains to people with disabilities. #MEAction’s Advocacy Director is joining the panel to discuss the anticipated impacts of H.R. 1 and how disability communities are responding to these changes.

Ben will share how people with ME and Long COVID are some of the communities most at risk of being harmed if exemptions to new Medicaid work requirements are based on incomplete definitions of what it means to be “medically frail.” If federal and state governments don’t recognize how serious and complex medical conditions like ME and Long COVID truly are, it will put people’s access to health care at risk. 

Come to the webinar and join #MEAction in our year-long “Frail and Furious” campaign to fight for people with ME/CFS and Long COVID to be recognized as “medically frail” and exempt from Medicaid work requirements. 

Join the Webinar! The H.R.1 overview webinar will take place this Monday, April 13th 2 p.m. ET / 11 a.m. PT.

Register for the Webinar

“By law, the “medically frail” category is supposed to include those with "serious or complex medical conditions," but how do we define which conditions are serious or complex? Will people living with chronic conditions that have been left stigmatized and neglected at the margins of medicine now be further punished by having their health insurance taken away?”

— Ben HsuBorger, #MEAction Advocacy Director

#MillionsMissing 2026 & Medicaid: 

We are tying in our #MillionsMissing campaign with our fight to protect Medicaid this year. Our core focus is on mobilizing the community to share their stories of how ME is a serious, complex disease that deserves recognition, care, support and research from our policymakers. We are also hosting an in-person event at HHS in Washington D.C. to educate HHS employees about the severity of ME and Long COVID. Read more about #MillionsMissing 2026.