Give your Patient Opinion (UK, IR & Aus)
September 25, 2015
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Independent organisation Patient Opinion wants to hear feedback on healthcare services from patients in Australia, Ireland and the UK.
Category: United Kingdom
Hidden Faces of M.E.
September 19, 2015
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UK charity Action for M.E. are this week hosting a social media campaign and its aim is to raise awareness of M.E. as a hidden illness among as wide an audience as possible, and to help people understand what having M.E. feels like. The all important message being, ‘there is a hidden face of M.E.
Let's Make a Million For Invest In ME!
September 13, 2015
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We invite you to join the expanding international community of supporters aiming to raise £1000,000 for Invest in ME Charity’s Biomedical Research Funds by May 2016.
This Video Could Save your Life
September 13, 2015
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The Use of Patient Blogs as a Care Resource Thanks to Greg Crowhurst for his incredibly kind review of my presentation on his blog and for giving permission for me to share his review on the #MEAction site: “My heart goes out to anyone newly diagnosed with “ME”, Myalgic Encephalomyelitis, for you are instantly thrown
UK CMRC Welcomes New Sponsors and Prepares for Research Conference
September 12, 2015
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The UK CFS/ME Research Collaborative People with M.E. need better treatment and support. This can only be achieved through increasing the quality of research; by coordinating a stronger collaborative approach to stimulate more research through bringing in expertise from outside the field and supporting early stage career researchers; and by working strategically to increase funding
Fund Research into CFS/ME and Educate Health Professionals
August 11, 2015
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I am one of the 250,000 people in the UK suffering with CFS/ME. Please help us to get the help that we so desperately need.
Help Shape Research in the NHS
August 10, 2015
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The UK’s National Institute for Health Research (NIHR) is asking for suggestions from patients, carers and members of the public for tests and treatments that need to be researched.
Portraits of invisible illness
August 6, 2015
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Juliet Chenery-Robson is a freelance photo-journalist and editor in the UK. She had to put aside her career and become a full time caretaker when her daughter developed ME at age 13. Robson has spent the past 10 years raising awareness for ME. She describes an all too familiar experience with doctors: [pullquote align=”full” cite=”” link=”” color=”#E7453A” class=””
News from Wales
July 30, 2015
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The situation for people with ME in Wales is extremely difficult. This is because there is no Specialist Care for people and the GPs do not have any training about the condition during their training. It is left up to them to find out about the condition if they need to or want to. Therefore
Help Action for ME Give Feedback to the House of Lords
July 29, 2015
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Action for M.E. is submitting feedback to the United Kingdom’s House of Lords Select Committee on Equality Act The call for evidence covers a number of specific areas, so Action for ME is asking you to respond to a set of questions to help them form a response. Don’t worry if you aren’t able to