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Category Archives: Arts & Letters

Are You a Young Person Affected by ME? How do you Visualize Health Equity? Join a National Contest

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The U.S. National Academy of Medicine (NAM) is holding a contest for young people (ages 5 to 26) to submit art, music, writing, videos, dance, etc. related to social determinants of health equity. This is an excellent opportunity for youth with Myalgic Encephalomyelitis (ME) - and their friends and siblings - ...

Community Roundup – End-Of-Year, 2018

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As always, our community continues to amaze us with its tenacity, creativity, intellect, hard work and generosity. Enjoy a round-up of some of the community happenings these past few months where people with myalgic encephalomyelitis (ME) around the world continue to fight for recognition, treatment, care and dignity. Austria Austrian broadcast station ...

A Poet Contextualizes Our Struggle

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Poet and artist, Christiana Baltais, writes about moving the mountains of stigma that harm people with myalgic encephalomyelitis (ME) in this poignant poem. She asked that we share her poem to encourage our community and beyond - people with ME, friends, family and allies - to donate to our cause on #GivingTuesday. Facebook ...

Community Roundup – Telling Our Story to the World

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Across the globe, we are pursuing creative projects across all mediums to tell the world about myalgic encephalomyelitis (ME). In our fall roundup, you'll be inspired reading about the work and accomplishments of some of our community heroes. Support the #MEAction community by donating to our #GivingTuesday campaign this Tuesday, Nov. 27  where ...

Sept & Oct — Research Roundup

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The end of September was a whirlwind! Between the CDC's website work, the CDC's awarding of a sole contract, the planning sessions for the NIH meeting, and the Stanford symposium, there wasn't much time to devote to breaking down the science.  If you'd like to see a quick run-down of ...

Living Deeply in Tiny Rooms

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Here is a question for you:  Is your life small or large? How do you know? Is it possible to have a big life in a single, small room? Or to lead a small life that is lived in many places? Questions like these have become more pertinent to me lately. They surface when ...

Beauty Sleeping: A Real Life Fairytale

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Once upon a time there lived a very beautiful princess, and the way you could tell she was beautiful was that she knew it. She didn't bother with big puffy dresses, or make up—she was beautiful on a tyre swing out in the woods of her poor little kingdom, and ...

You Are Lovely.

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Artwork by Elizabeth D'Angelo, who has severe ME. View, purchase and commission her artwork here. People can be infuriating. People can tell you that you are wrong about your own experience. That if only you were braver, bolder, cleverer, or otherwise different you’d be more. Whether the more they have in ...

Netflix Docuseries “Afflicted” is Terrible

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Read a response from some of the subjects of Afflicted: "The Truth Behind Netflix’s ‘Afflicted.'" We anxiously awaited the release of Netflix's docuseries, "Afflicted," on Aug. 10 and are appalled by the dismissive, psychosomatic lens through which the patients are ultimately portrayed. The casting director had said that the “intention is to look ...

PBS Audience Award: Vote for Unrest

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We are thrilled to announce that Unrest is in the running for the 2017-18 Independent Lens Audience Award! It was an honor to have Unrest premiere on PBS | Independent Lens this past January and it would mean the world to us if we could count on your support for ...