Category: Medicine

PACE Trial Controversy Grows

In wake of David Tuller’s investigation, PACE investigators publish follow up study Last week, journalist David Tuller published a four-part investigative piece on the 2011 PACE trial, a £5 million (US$8 million) non-blind study of cognitive behavioral therapy (CBT) and graded exercise (GET) as treatment for chronic fatigue syndrome. In his piece, Tuller quotes top

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Neurology Now writes about CFS

Neurology Now on CFS Neurology Now recently posted an article targeted at neurologists with the headline “Beyond Tired: Is chronic fatigue syndrome a real medical condition? Yes, according to a report from the Institute of Medicine, which urges physicians to treat it accordingly.”  The piece is primarily focused on the IOM report and its suggested

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Couple battles ME and HIV

The moving story of Franky, an ME patient and Randy, his HIV positive caretaker and partner. Every once in a while there along comes a story that leaves even me teary-eyed. Waking up this afternoon after my siesta, I opened my email to discover this true gem from the Huffington Post Blog of Dr Franky Dolan. I

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Study overturns old ideas on mitochondria

“Scientists are reporting the first clear evidence that muscle cells distribute energy primarily by the rapid conduction of electrical charges through a vast, interconnected network of mitochondria — the cell’s “powerhouse” — in a way that resembles the wire grid that distributes power throughout a city.”

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Ampligen price more than doubles, available soon in Europe

Ampligen price more than doubling in the US? As many patients who are receiving Ampligen in the US already know, the price of Ampligen is set to dramatically increase. Two patients I spoke with today said the price would more than double from $75 a vial to $200 per bottle. At their current dosages, that would raise the

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