Psychology Today fails in its duty of care to people with ME
October 2, 2020
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#MEAction UK has written to the online publication Psychology Today asking for the retraction of a stigmatising blog post.
Category: Media
OUR SUMMER IN REVIEW: ADVOCACY AND EDUCATION
September 2, 2020
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What a Summer for Advocacy and Education! We know the summer isn’t over yet, but A LOT has been happening with ME advocacy and education in the United States and the United Kingdom, and we want to make sure you are up to date, in the loop, and ready for next steps! National Institutes of Health (NIH)
GOOD MORNING BRITAIN GETS IT WRONG ON POST-COVID TREATMENT AND ME
August 21, 2020
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#MEAction UK has written a letter of complaint to Good Morning Britain in response to recent statements from Dr Hilary Jones on the programme, regarding the rehabilitation of long COVID patients. In his interview with Kate Garraway yesterday, Dr Jones recommended graded exercise as a strategy for those recovering from COVID-19. There is now a
Washington Post Editorial Says Some COVID-19 Patients Will Develop ME
June 2, 2020
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The Washington Post published an editorial last Saturday about how researchers are warning that COVID-19 may lead to long-term, debilitating illnesses, like myalgic encephalomyelitis (ME), in some patients. The editorial was written by former Washington Post reporter, Brian Vastag, and #MEAction co-founder, Beth Mazur, both of whom have ME. Many people infected with COVID-19 are
Your #MEAction guide to the holidays: with Pinboards!
December 7, 2019
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The holidays are a stressful time. Between gift-giving (and buying), travel, cooking, decorating, and guests in the home – not to mention winter colds, increased heating bills, and challenges in local travel like snow and icy roads – it’s no wonder that many people emerge from the hazy shade of winter completely exhausted. That goes
#MEAction Responds to Attacks on ME Community in The Guardian and Psychology Today
August 1, 2019
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Listen to the article: Part 1: Part 2: In the past two weeks, The Guardian/The Observer and Psychology Today US have published articles portraying the myalgic encephalomyelitis (ME) community as an angry, misguided mob using social media to denigrate scientific research. Both articles focus on the criticism that Dr. Michael Sharpe, one of the
Sept & Oct — Research Roundup
November 15, 2018
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The end of September was a whirlwind! Between the CDC’s website work, the CDC’s awarding of a sole contract, the planning sessions for the NIH meeting, and the Stanford symposium, there wasn’t much time to devote to breaking down the science. If you’d like to see a quick run-down of what’s been going on lately
Australia: National TV Program Debates ME/CFS, Raises Ire of Community
October 30, 2018
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Australia: An hour-long, nationally televised discussion panel on myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) on Oct. 16 has raised the ire of many in the patient community, who claim the program overrepresented the likelihood of recovery from the illness, and promoted harmful graded exercise therapy (GET). Insight is a weekly current affairs show hosted
Join the fight against stigma and pseudoscience in New York
October 19, 2018
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This weekend, the New York State Psychiatric Institute is hosting a conference on psychosomatic illness at Columbia University Medical Center — and they invited Per Fink to speak. If you have watched Unrest, you know that Fink’s clinic was responsible for the involuntary institutionalization of Karina Hansen, a Danish young woman with ME. [pullquote
Open Letter Demands Removal of Netflix's "Afflicted" – Sign the Petition
September 18, 2018
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On September 18th, more than 40 writers, activists, artists, filmmakers, physicians, and scientists came together to write an open letter to Netflix to request that Afflicted be immediately removed from the service. “We are deeply concerned about its unethical treatment of its subjects and its many factual errors and omissions,” states the letter. “Its inclusion