All News Archives

Category: All News

Young woman sits on floor at edge of bed looking distraught with head in hand

ME & Long COVID patients need telemedicine prescribing flexibility

March 31, 2023 3 Comments

DEA should amend its proposed rule to ensure access to care

NIH Must Not Overlook Evidence of Exercise Harm

March 22, 2023 4 Comments

Long COVID Exercise study must address safety, efficacy concerns.

Text “Exercise can worsen Long Covid.” A person is falling through the air; their face is blurred and legs and arms are reaching upward. The background is a cracked glass screen.

MEAction questions Long COVID exercise study’s safety, efficacy

March 6, 2023 2 Comments

Calls for immediate public release of RECOVER’s clinical trial design

Left: Woman healthy and happy standing beside her husband. Right: Sick woman in hospital bed.

Woman with Severe ME and EDS starving to death in NHS hospital

February 22, 2023 12 Comments

UPDATE: We want to provide a brief update on Sami Berry’s case and what she needs help with now. The situation in hospital reached the point that Sami decided she had to self-discharge to try and stay alive. She is at home with a Percutaneous Endoscopic Jejunostomy (PEJ ) tube but she needs treatment with

Let’s Look at #MEAction’s Top Hits from 2022

January 9, 2023 No Comments

As we ring in the new year, it is a wonderful time to reflect on how much #MEAction accomplished in a very busy and exciting 2022! There are so many wins to share, so we decided to narrow down the list to our TOP HITS! ——————- #MILLIONSMISSING 2022: * Bringing together the powerful Virtual #MillionsMissing

I live at the intersection of pandemics: HIV, ME/CFS & Long COVID

December 8, 2022 No Comments

Reflections on embodying intersecting identities of disease and disability

ME/CFS Neglect Kills. Act Up. Fight Back. #MEAction. Red tinted image with protestors laying on grass in front of White House with grave stones. Protestor raises one clenched fist above head.

My Truth, Our Trauma, & A Call to Keep Fighting

December 7, 2022 No Comments

Reflections from the World AIDS Day White House Protest

Background photo of White House and lawn between two trees, tinted red. Bold text: "Fund Pandemic Plans" Below in small text: "World AIDS Day 2022"

Take Action Virtually with our White House Protest

November 30, 2022 No Comments

AIDS, ME/CFS & Long COVID activists demand Biden, Congress fund pandemic plans

Large bold text, on an angle reads: Join us for World AIDS Day to End Pandemic Nightmares. Dec 1 12 PM EST outside the White House and online everywhere. Below, a person of color in a face mask with a sign reading "HIV, Long COVID and ME/CFS, COVID-19, Ebola, cholera, monkeypox, TB, and more." Next to a white person in a face mask holding a sign reading "End COVID Everywhere." Below are the logos of organizational co-sponsors: Health GAP, Universities for Access to Essential Medicines, ACT UP New York, ACT UP Philadelphia, Long COVID Justice, Black and Latinx Community Control of Health, MEAction, The Peoples Vaccine, CPD Action, Spaces in Action, Strategies for High Impact, Access is Global.

On World AIDS Day, We’re Taking Action at the White House

November 23, 2022 No Comments

White House Must Confront Global Health Nightmare of Colliding Pandemics

Text across top of image reads: "Experts in infection associated chronic illness" with "WE WANT YOU!" bolded below it. Hand with finger pointed out at viewer. "Apply now" buttons to the left and right with mouse cursor clicking on them.

Infection-associated chronic disease experts needed at ARPA-H

November 22, 2022 1 Comment

Congress launched ARPA-H (the Advanced Research Projects Agency for Health) this past March to focus on high-risk, high-reward research projects with the goal to solve intractable health problems. As ARPA-H is in the process of hiring its first cohort of program managers, #MEAction and a coalition of chronic disease advocacy groups have published an open