Category: All News

2021 MillionsMissing announcement for the week of May 12th

Get ready for #MillionsMissing

We are gearing up for #MillionsMissing 2021! This year will be a week long event, from May 9 to 15, of action and activities to strengthen our community, and fight for recognition, research and medical education for myalgic encephalomyelitis (ME). Check out our website for the #MillionsMissing timeline of events, grab your t-shirt, and plan a local event!  We

Read More »
photos of 3 red shirts front and back each with a different #MillionsMissing theme

Get ready for #MILLIONSMISSING 2021 – Purchase your t-shirt

We are excited to announce that #MillionsMissing t-shirts are now available for purchase along with other items in our online stores!  Shop U.S. Shop UK Shop AUS This is our 6th anniversary of #MillionsMissing to raise awareness and fight for recognition, education and research for people living with myalgic encephalomyelitis (ME or ME/CFS).  Millions are

Read More »
text: fail

NIH & CDC leadership are failing people with ME/CFS

#MEAction has written an open letter to NIH institute director, Dr. Walter Koroshetz, and CDC division director Dr. Inger Damon to express our lack of confidence in their interagency approach to ME/CFS. Drs. Koroshetz and Damon co-lead the Interagency ME/CFS Working Group, which met last month, and oversee the ME/CFS program activities within their respective

Read More »
Screenshot showing 4 of the panelists on a Zoom screen with a red paly button in the middle and the MEACtion logo in the corner

Telebriefing was a success!

We were thrilled at the outcome of the #MEAction press briefing last week where we invited a panel of experts to discuss the intersection between long COVID and myalgic encephalomyelitis (ME) to the media. The panelists made it crystal clear that a subset of long haulers are meeting the criteria for ME, and that it

Read More »

Investigating the impact of Covid-19 on ME – Survey

Please help #MEAction UK and #MEAction Scotland by taking part in this survey to find out the effect that Covid-19 has on people with ME. Take the survey We are working in collaboration with Action for ME to gather evidence on the impact of Covid-19 on our community. We have heard many stories from people

Read More »

Solve M.E.’s Advocacy Week and the Long Covid Alliance

Solve M.E. Advocacy week will be from Sunday, April 18th, 2021 to Saturday, April 24th, 2021. As a core member of the Long Covid Alliance and a partner on Advocacy Day, #MEAction would like to encourage you to participate in this important event if you are able. The keystone event is Advocacy Day, on Tuesday,

Read More »

Impacts of Shift Work on Chronic Conditions

Who: Dr. Rachael Blasiman and Hayley Shasteen at Kent State University are interested in shift workers and people with chronic conditions. You may still participate if you do not fit in either category. What: Participation is anonymous and involves taking a survey that will take approximately 30 minutes. The survey will ask questions about shift

Read More »

ME/CFS International Family Impact Study

Who: Dr. Nina Muirhead and the Study Team at Cardiff University, United Kingdom have developed a survey with two questionnaires, one for the patient and one for a life partner or family member. If you cannot be together to complete it, you can save and return. What: An international research study, looking at the impact

Read More »
Collage of the 5 winning postcards with Join our 2021 campaign written on the side

Postcards to Doctors Continues – Sponsor or Participate!

Postcards to Doctors is going strong! Postcards to Doctors, which we launched in 2019, is a medical education campaign in the US that focuses on getting medical professionals to learn more about ME. Our aim is to get as many people as possible to take the UNREST CME course, and Postcards to Doctors has enabled us to reach

Read More »
Scroll to Top