#MEAction sent out a press release last week to alert media to the #MillionsMore developing ME following COVID-19. We invited 651 journalists in the U.S and 552 journalists in the U.K. to join our #MillionsMissing event this Wednesday, May 12th. Before COVID-19 long haulers there were the #MillionsMissing… Read the US Press Release Read the
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In light of this new evidence of exacerbation of ME from Covid-19, #MEAction UK have again written to Matt Hancock and Professor Stephen Powis to make them aware of the risk to people with ME in not being able to access the Covid-19 vaccine as a priority.
Read the first findings from the survey #MEAction UK and #MEAction Scotland are conducting with Action for ME to gather evidence of the impact of Covid-19 on people with ME. Preliminary Report The aim of the survey is to provide data that can be used, along with personal stories, to help our campaign to make
Outreach to BIPOC communities has always been a challenge in ME/CFS. In a disease where diagnosis is so hard to come by, who gets a diagnosis is not a matter of prevalence but a matter of privilege. While community-based studies show just as many Black people get ME as white people, if not more, white
We are thrilled to see that the ME/CFS Clinician Coalition has released recommendations for medical providers on specific tests and treatments to use for caring for people with ME/CFS.
This is an exciting opportunity to set research priorities for ME, and could be the next big step towards improvinging research funding in the UK.
Over the past year #MEAction has been focusing on reaching out to the national press to make sure journalists and medical professionals are educated about ME and can provide the correct context when writing articles about long COVID and long haulers. Our efforts have paid off and we continue to receive coverage and new opportunities
Last November, I announced that I was stepping down as Executive Director to focus on my health and well-being. Since then, our entire Board of Directors have led a wide search for the right person to lead #MEAction into the future.
#MEAction is excited to share more work from the Writing from our ME Lives writing group!
#MEAction is excited to share two pieces of work from the Writing From Our ME Lives writing group. We will be sharing more work in the coming days! Hope you enjoy their work. If you are interested in joining the next Writing From Our ME Lives meeting, they meet on every Thursday at 11am PST.