UK charity Action for M.E. are this week hosting a social media campaign and its aim is to raise awareness of M.E. as a hidden illness among as wide an audience as possible, and to help people understand what having M.E. feels like. The all important message being, ‘there is a hidden face of M.E.
Written by Brent Handel Originally published in The Lawyers Weekly June 26 2015 issue, reprinted with permission Chronic fatigue syndrome/myalgic encephalomyelitis, commonly referred to as ME/CFS, is characterized by profound fatigue, cognitive dysfunction, sleep abnormalities, autonomic manifestations, pain, and other symptoms that are made worse by exertion of any sort. For decades, plaintiffs’ personal injury
We invite you to join the expanding international community of supporters aiming to raise £1000,000 for Invest in ME Charity’s Biomedical Research Funds by May 2016.
The Use of Patient Blogs as a Care Resource Thanks to Greg Crowhurst for his incredibly kind review of my presentation on his blog and for giving permission for me to share his review on the #MEAction site: “My heart goes out to anyone newly diagnosed with “ME”, Myalgic Encephalomyelitis, for you are instantly thrown
Stuart Murdoch talking openly about his experiences of M.E., Los Angeles, August 2015 “This is a pop band that sprang out of infirmity.” Stuart Murdoch in a great article from The Guardian December 2014 “Critics love Belle and Sebastian, they always have.” Daily Post September 2015 The Solve ME/CFS Initiative has managed to produce some
Julie Rehmeyer on Science and ME/CFS Julie Rehmeyer, an award-winning science and math writer, was recently interviewed about how her experience with ME/CFS has affected her perspective on science. The insightful piece ranges from a discussion of how the CDC’s treatment of ME/CFS has lessened her trust of institutions of science to how her experiences have
MedPage Today Focuses on Need for Recognition of ME/CFS and Research Funding MedPage Today, a news site for medical workers, published an article about ME/CFS that mentions the #MEAction campaign to increase federal research funding. The article gathered quotes from top ME/CFS researchers Leonard Jason and Lucinda Bateman, and it summarized the findings of the recent
The UK CFS/ME Research Collaborative People with M.E. need better treatment and support. This can only be achieved through increasing the quality of research; by coordinating a stronger collaborative approach to stimulate more research through bringing in expertise from outside the field and supporting early stage career researchers; and by working strategically to increase funding
Blogger Help us write news and opinion content for #MEAction and join a vibrant community of patient activists. Description: #MEAction’s volunteer bloggers develop their own stories and write content ideas suggested by the MEAction team. We are looking for folks who can write on any topics but are especially interested in covering science and policy. We
Community organizer Help us organize and expand the capacity of the ME community. Description: #MEAction’s community organizer is responsible for grassroots community building, outreach to volunteers, local #MEAction groups and ally organizations; and developing programs for patient education and empowerment. Skills: Strong interpersonal skills, team building skills, and ability to talk on phone a moderate amount. Knowledge
