#MEAction, Author at #MEAction Network

Crowdsourcing information for a pharmacy M.E. resource

October 12, 2015 No Comments

I’m working with a national M.E. charity, Action for M.E., as their Volunteer Pharmacist, providing information about pharmacy services, writing health and pharmacy-related articles, and putting together a resource for pharmacy professionals about M.E. I’m gathering thoughts and suggestions from both people with M.E. and pharmacy professionals because it’s important that the resource includes a full picture of M.E.

UK CMRC conference on October 13 and 14

October 11, 2015 1 Comment

UK CMRC conference to be livestreamed on 13 and 14 October Parts of this year’s UK CFS/ME Research Collaborative (CMRC) international conference, which will be held in Newcastle on Tuesday the 13th and Wednesday the 14th of October, will be livestreamed by the charity Action for ME. The conference has a full two-day agenda of

Push to change ME/CFS NICE guideline

October 10, 2015 3 Comments

Minutes just released for the 15 July 2015 meeting of the cross-charity Forward-ME group record a discussion with Dr Martin McShane of NHS England on getting him to recommend that the NICE guideline on ME/CFS should be revised. The guideline, which should be based on the best available scientific evidence, and which is followed by

The Atlantic publishes a nuanced push for public funding

October 9, 2015 No Comments

The Tragic Neglect of Chronic Fatigue Syndrome With a surprisingly broad-ranging and detail-rich article by Olga Khazan entitled “The Tragic Neglect of Chronic Fatigue Syndrome,” The Atlantic became the latest national publication to inform its readers about the severity of disease impact, dearth of medical understanding and treatment, lack of public awareness, and abysmally low

Vote DAILY For National ME/FM Action Network To Win $100K In Aviva Contest For Research Of ME And FM!

October 5, 2015 No Comments

Vote DAILY between October 6-23, 2015 in the Aviva contest to help the National ME/FM Action Network in Canada win up to $100,000 for research of ME and FM.

Poll: Should #MEAction sign this NIH Letter?

September 26, 2015 8 Comments

Bob and Courtney Miller are writing a letter to Francis Collins, Director of the National Institutes of Health (NIH) and Sylvia Burwell, US Secretary of Health asking that the NIH: Assign ME/CFS to a strong, well-funded Institute like NINDS, to enable strategic planning and structural accountability. Fund a mix of intramural and extramural research (as NIH does for

Autoantibodies found in subset of CFS patients

September 26, 2015 5 Comments

A new German study published in Brain, Behavior, and Immunity by Loebel, et al. has found that Chronic Fatigue Syndrome* may be an infection-triggered autoimmune disease, at least in a subset of patients studied. Samples from a large cohort (n=268) in Berlin and a smaller sample of patients treated with Rituximab (n=25) were measured against controls (n=168).

Help Us Put a Face on ME/CFS!

September 20, 2015 No Comments

The Solve ME/CFS Initiative has launched a campaign to help increase awareness of —and ultimately research funding for—ME/CFS. The campaign, “Humans of ME/CFS,” is a takeoff of the popular “Humans of New York” photoblog and Facebook page. The aim of the campaign is to show the faces and stories of those suffering from ME/CFS worldwide

Hidden Faces of M.E.

September 19, 2015 5 Comments

UK charity Action for M.E. are this week hosting a social media campaign and its aim is to raise awareness of M.E. as a hidden illness among as wide an audience as possible, and to help people understand what having M.E. feels like. The all important message being, ‘there is a hidden face of M.E.

Validity of Chronic Fatigue Syndrome bolstered by research

September 17, 2015 1 Comment

Written by Brent Handel Originally published in The Lawyers Weekly June 26 2015 issue, reprinted with permission Chronic fatigue syndrome/myalgic encephalomyelitis, commonly referred to as ME/CFS, is characterized by profound fatigue, cognitive dysfunction, sleep abnormalities, autonomic manifestations, pain, and other symptoms that are made worse by exertion of any sort. For decades, plaintiffs’ personal injury

Author: #MEAction