Author: Ben HsuBorger

UK Call to Action: Ask Your MP To Sign EDM 1247!

  If you are in the UK, please email your MP asking them to sign Early Day Motion 1247. What is an EDM? Early day motions (EDMs) are motions submitted for debate in the House of Commons for which no day has been fixed. As there is no specific time allocated to EDMs very few

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Don't Miss the CFS Advisory Committee Meeting This Wednesday & Thursday

CFSAC is Wednesday (12/13) and Thursday (12/14) of this week! Please stand with us as we continue to urge the U.S. government to fund ME fairly and equally. View the calendar event here. This Chronic Fatigue Syndrome Advisory Committee (CFSAC) meeting will take place at the Hubert H. Humphrey Building, 200 Independence Avenue, S.W., Washington,

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Living w/ ME Support Group: November & December Schedule

Our November and December schedule for the Living w/ ME Support Group has just been announced. Sunday, November 12: Avoiding Crashes Sunday, December 10: Surviving the Holidays For those who want to get involved in shaping the future of this support group be sure to join our upcoming planning session: Friday, November 3: Planning Session

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How to Volunteer with #MEAction

Want to become a part of the global team of #MEAction volunteers? Interested in getting more involved in general or using a particular skill or expertise? Want to better understand how you can use our digital platform and global network for greater ME activism and advocacy? Join us for a live video call with community

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The End ME/CFS Tour in Boston w/ Linda Tannenbaum

Open Medicine Foundation (OMF) president, Linda Tannenbaum, will give a special lecture on the state of ME/CFS research at Newton-Wellesley Hospital in Boston, MA, on Saturday, November 4, 2017 from 1:00 to 3:30 pm. The event is sponsored by the Massachusetts CFIDS/ME & FM Association. Open Medicine Foundation® (OMF) is the leading research organization working to end ME/CFS and related chronic complex diseases.

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The End ME/CFS Tour in NYC w/ Linda Tannenbaum

Open Medicine Foundation (OMF) president, Linda Tannenbaum, will give a special lecture on the state of ME/CFS research at Mount Sinai West Hospital in New York City on Wednesday, November 1, 2017 from 6:30-8:00 pm. The event will be moderated by Terri L. Wilder, #MEAction New York Activist. Open Medicine Foundation® (OMF) is the leading

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NEW! Living w/ ME Support Group

Do you have ME and want to connect and share with others from around the world facing similar issues? Join us every other Sunday for a time of open sharing and discussion. Help us be a supportive and inclusive global community for each other. Our goal is to draws strength from each others’ experiences and

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#MEAction Launches First New York Organizing Meeting

With the excitement and attention around the theatrical premiere of ‘Unrest’ in NYC this month now is the time to take ME advocacy and activism to a new level in New York. Over the past year there has been increasing progress at the state level. Last fall a #MillionsMissing protest was held in front of

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NIH announces centers for ME/CFS research

The NIH announced the grants for three Collaborative Research Centers (CRC) and a Data Management Coordinating Center (DMCC) that will work together as a consortium for ME/CFS. These grants will be managed by National Institute of Allergy and Infectious Diseases and National Institute of Neurological Disorders and Stroke. The total cost of the projects for fiscal year

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Parliament EDM 271 Urges NICE to Update Guideline on ME

UPDATE On 20th September, NICE overturned the original proposal and announced it would review its guideline on ME. This is great news but means we need to double our efforts to make sure that the new guideline is robust enough to protect and help people with ME for generations to come. We still need you

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