Ben HsuBorger, Author at #MEAction Network

Open Letter Demands Removal of Netflix's "Afflicted" – Sign the Petition

September 18, 2018 2 Comments

On September 18th, more than 40 writers, activists, artists, filmmakers, physicians, and scientists came together to write an open letter to Netflix to request that Afflicted be immediately removed from the service. “We are deeply concerned about its unethical treatment of its subjects and its many factual errors and omissions,” states the letter. “Its inclusion

Stop CDC from Hiring Shoddy Contractor for ME Treatment Guidelines!

August 26, 2018 No Comments

PETITION UPDATE (Tuesday, September 11, 2018) The CDC has posted an updated, competitive bid solicitation for the development of federal treatment guidelines for ME. The community outcry, and over 8,000 petition signatures, protesting the previous rigged, sole-source contract got the CDC’s attention. Yet the solicitation is still only open through Thursday, September 13 meaning interested applicants

UK: Urge your MP to attend the 21st June debate on ME

June 8, 2018 8 Comments

A 3-hour Westminster Hall debate on Myalgic Encephalomyelitis (ME) treatment and research has been scheduled for Thursday, 21st June, 1:30-4:30 p.m. We need to encourage as many of our MPs as possible to attend. Contacting your MP has never been easier with this new tool. Simply enter your postcode below to get started. Urge your MP

UK Call to Action: Ask Your MP To Sign EDM 1247!

May 16, 2018 9 Comments

If you are in the UK, please email your MP asking them to sign Early Day Motion 1247. What is an EDM? Early day motions (EDMs) are motions submitted for debate in the House of Commons for which no day has been fixed. As there is no specific time allocated to EDMs very few

Don't Miss the CFS Advisory Committee Meeting This Wednesday & Thursday

December 4, 2017 1 Comment

CFSAC is Wednesday (12/13) and Thursday (12/14) of this week! Please stand with us as we continue to urge the U.S. government to fund ME fairly and equally. View the calendar event here. This Chronic Fatigue Syndrome Advisory Committee (CFSAC) meeting will take place at the Hubert H. Humphrey Building, 200 Independence Avenue, S.W., Washington,

Living w/ ME Support Group: November & December Schedule

October 30, 2017 1 Comment

Our November and December schedule for the Living w/ ME Support Group has just been announced. Sunday, November 12: Avoiding Crashes Sunday, December 10: Surviving the Holidays For those who want to get involved in shaping the future of this support group be sure to join our upcoming planning session: Friday, November 3: Planning Session

How to Volunteer with #MEAction

October 25, 2017 No Comments

Want to become a part of the global team of #MEAction volunteers? Interested in getting more involved in general or using a particular skill or expertise? Want to better understand how you can use our digital platform and global network for greater ME activism and advocacy? Join us for a live video call with community

The End ME/CFS Tour in Boston w/ Linda Tannenbaum

October 11, 2017 2 Comments

Open Medicine Foundation (OMF) president, Linda Tannenbaum, will give a special lecture on the state of ME/CFS research at Newton-Wellesley Hospital in Boston, MA, on Saturday, November 4, 2017 from 1:00 to 3:30 pm. The event is sponsored by the Massachusetts CFIDS/ME & FM Association. Open Medicine Foundation® (OMF) is the leading research organization working to end ME/CFS and related chronic complex diseases.

The End ME/CFS Tour in NYC w/ Linda Tannenbaum

October 9, 2017 3 Comments

Open Medicine Foundation (OMF) president, Linda Tannenbaum, will give a special lecture on the state of ME/CFS research at Mount Sinai West Hospital in New York City on Wednesday, November 1, 2017 from 6:30-8:00 pm. The event will be moderated by Terri L. Wilder, #MEAction New York Activist. Open Medicine Foundation® (OMF) is the leading

NEW! Living w/ ME Support Group

September 27, 2017 6 Comments

Do you have ME and want to connect and share with others from around the world facing similar issues? Join us every other Sunday for a time of open sharing and discussion. Help us be a supportive and inclusive global community for each other. Our goal is to draws strength from each others’ experiences and

Author: Ben HsuBorger