1:00pm EDT (New York) | 5:00pm GMT (London) UPDATE:The event is very full, so not everyone will be able to be on Bluejeans (info pasted below). We are planning to both a) record the event and b) livestream on Facebook. So if you do not get into the bluejeans call, do not worry. You can either …
Please join us for the monthly California #MEAction support and informational meeting every last Thursday of the month at 6:30 pm (PDT). The purpose of the meeting is to bring together Californians who have ME, along with their family and friends, to discuss their concerns, let out their feelings, exchange information, and develop advocacy strategy. Especially …
Your input is vital as #MEAction UK responds to the consultation on the draft ME/CFS guideline. We want you to steer our response and explain what changes you think need to be made to this guideline before the final version is published in April 2021.
The second of two calls facilitating community discussion of the draft ME/CFS guideline, and inputting to #MEAction UK's response to the consultation.
Based on your responses to our polls on social media, we’ll be screening a double feature of Spiderman: Into the Spiderverse & Fargo on the eve of Thanksgiving, Wednesday, November 25th. Into the Spiderverse will begin at 1 PT / 4 ET and Fargo will begin at 3:30 PT / 6:30 ET. *Notes about both …
Friendsgiving Community Movie Party – Into the Spiderverse & Fargo! Read More »
A People with ME writing group is beginning! Come, Try it out!! #MEAction is excited to partner with longtime ME advocate and mother of a pwME, Bobbi Ausubel, to host a brand new writing group for people with ME, Writing From Our ME Lives. This group is for people with ME who are interested in …
Join us on Sunday December 20th for a Holiday Party! This is open to everyone in the community, and we hope you'll hop on for a low-key and cozy hang! Put on your PJs and get ready for a round of games, story-telling, and merry-making of all sorts. Follow the link below to join via …
Join us for a twitter conversation with Jamison Hill, author of the new memoir When Force Meets Fate: A Mission to Solve an Invisible Illness.Follow @MEActNet and Jamison Hill and search the #WhenForceMeetsFate hashtag on Twitter to join us as we get the chance to speak to Jamison about his new work!Jamison Hill is a writer with ME and has written …
Join #MEAction Maryland on the 3rd Tuesday of each month at 1 pm EST for our monthly support call! This monthly call will focus on creating support and community for pw/ME. This will be a space to connect with fellow pw/ME, exchange helpful resources, and feel heard and understood in a safe and supportive environment. …
Please join us for our 2 monthly meetings. We meet on the 2nd Thursday for support and discussion of treatments, and on the 3rd Thursday to work on our advocacy projects. Zoom: tinyurl.com/meactionaz Call in: (602) 753-0140Meeting ID: 949 275 8687Passcode: 4455 The purpose of the support meeting is to provide support to Arizona people …
Please join us for the monthly Advocacy working group meeting. We now meet on the 3rd Thursday to work on our advocacy projects. The purpose of the advocacy meeting is to provide project updates, coordinate volunteers, and work together on current projects. Together, we make a difference. Arizona advocates, we need you there! Zoom: tinyurl.com/meactionaz …
#MEAction is excited to interview ME advocate and author Jean Meltzer who just released her first novel, The Matzah Ball, which features a protagonist with ME on Friday, October 22nd on Facebook Live at 11am PST/2pm EST. We will be discussing the book, why it was important to write the lead character with ME, and …
Facebook Live Interview with Author Jean Meltzer–The Matzah Ball Read More »
