Author: #MEAction Scotland

A mass lie down outside of the Scottish Parliament as part of Millions Missing Scotland 2022. Approximately 30 people are lying on the floor in front of the entrance to the parliament. Many are wearing red. A small group are sitting and standing in the distance, looking on. Overlaid is a red block with text that says ‘Ask your MSPs to sign motion S6M-06112.’ The ME Action Scotland logo is in the bottom right corner.

Ask your MSPs to sign motion S6M-06112 and support people with ME

At #MillionsMissing Scotland many MSPs pledged their support for people with ME, and now they have a chance to follow up on that commitment. And we need you to let them know about it! Sue Webber, MSP for Lothian, has put forward a motion that asks the Scottish Parliament to recognise the outcomes and recommendations

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A group of people stand outside the Scottish Parliament building at Millions Missing Scotland 2022 looking serious. Many of them are wearing red ME Action t-shirts. Some people are holding signs that say Millions Missing. In the middle, someone is holding a large piece of card with a pledge on it and signatures of MSPs. One person is in a wheelchair and one is on a mobility scooter.

Members of the Scottish Parliament pledge their support for #MillionsMissing

On Wednesday 28th September, #MEAction Scotland led a successful #MillionsMissing demonstration outside the Scottish Parliament – the first time it’s been held in-person for three years. While it was in some ways a smaller event than #MillionsMissing Scotland was in 2018 and 2019, what it lacked in spectacle it made up for in engagement from

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Red box at the top says Join us at #MillionsMissing Scotland! Then there is a picture of people gathered at a protest holding signs and wearing read shirts, some are in wheelchairs. Low bottom of the image has a red box that says New Date: Wednesday, 28th September 12:30-2:30pm

New date for #MillionsMissing Scotland

Following the postponement of #MillionsMissing Scotland, the demonstration has been rescheduled to Wednesday 28th September. #MillionsMissing Scotland will now take place on Wednesday 28th September, from 12.30-2.30pm. We appreciate this isn’t a lot of notice but we are keen to build on the momentum the event has already gained and to hold it while it

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Red #MilllionsMissing words with a red string underneath, laid upon a image of books on shelves. Red square with the #MEAction Scotland Logo and the words #MillionsMissing Scotland 14th September- POSTPONED!

#MillionsMissing Scotland postponed

The #MillionsMissing Scotland demonstration, due to take place on Wednesday 14th, has had to be postponed. Following the death of Her Majesty the Queen, the Scottish Parliament is suspended, which means we won’t be able to achieve the aims of the event. We appreciate that it’s disappointing and apologise for any inconvenience caused, particularly to

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A red graphic with white text along the bottom that says ‘Ask your MSPs to join us at Millions Missing Scotland!’ On the left is an icon of a laptop and the email @ symbol, with three yellow envelopes floating out of it. On the right is a photo in a white frame of a group of people outside the Scottish Parliament building, from the protest in 2017. They are wearing red ME Action t-shirts and holding posters and banners about ME. Some are standing and some are sitting in wheelchairs. A person in the centre is holding a microphone.

Ask your MSPs to join us at #MillionsMissing Scotland

Whether or not you can join us in person at this year’s #MillionsMissing, you can help to make it a success by emailing your MSP and asking them to come out, say hello and sign a pledge to support people with ME. #MEAction Scotland will be outside the Scottish Parliament to engage with as many

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A laptop on a desk displaying the PDF of the NICE guideline for diagnosis and management of ME. There is a cup to the left and a pair of glasses and some folder to the right. White text in a red box reads ‘Update on Scottish implementation of the NICE Guideline’ and the ME Action Scotland logo is in the top left.

An update on the Scottish implementation of the NICE guideline

As we announced in February, the Scottish Government has committed to implementing the new NICE guideline for diagnosis and management of ME. The first step in the process was a Scottish stakeholder review, carried out externally by consultant Blake Stevenson.  The report on the review was published in July and #MEAction Scotland supports its findings.

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Word: #MEAction Scotland: First Community Call with an image of a laptop showing a video call with 10 people of different ages, races and genders. In the background to the right of the laptop is a green plant and in the foreground in soft focus is a white hand holding a blue mug.

#MEAction Scotland holds its first community call

Last week, #MEAction Scotland volunteers held the first in a series of community calls. The online meetings will take place quarterly and have been set up to connect us with more people with ME and allies across Scotland. Our first call was a success! We were delighted to be joined by a mix of old

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NICE guideline to be implemented in Scotland

NICE news for Scotland! Throughout the development of the NICE guideline for ME/CFS, #MEAction Scotland has been in regular contact with the Scottish Government about the change needed in Scotland. Now that the guideline has been published, the government has got in touch to involve us in a development. What is the plan?The government plans

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University of the West of Scotland Looking for Research Participants Featured Image

Be part of designing UWS research into ME and long COVID

UPDATE: The research team have let us know that they’ve received a huge response to this request and they now have the information they need. They’ll be in touch with people individually if they are eligible to participate in the study. If you got involved, thanks for your support! Researchers at the University of the

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