Enrolling: Online Pediatric Research Survey

Share on facebook
Share on twitter
Share on email
As there is currently limited research on pediatric ME/CFS, the purpose of the study is to improve our understanding of the symptoms and experiences of youth with ME/CFS by conducting a research survey.
Who:

The Center for Community Research at DePaul University



When:

Ongoing


What:

We would like to invite children/adolescents (ages 5-17) with myalgic encephalomyelitis (ME) and/or chronic fatigue syndrome (CFS), as well as their parents, to participate in a research study conducted by the Center for Community Research at DePaul University. Parents must be age 18 or older and the parent and the child must speak/read English.
Participating in the study entails completing an online questionnaire (a 30-minute parent section, followed by a 30-minute child section).
Thank you for considering this research opportunity. Please feel free to contact Madison Sunnquist ([email protected]) with any questions, or if you would like to be contacted about future research opportunities related to pediatric ME and CFS.


Where:

Online


How to Participate:

The questionnaire can be accessed at the link below. You do not need to complete all of the questions at one time; you may save and return to complete the survey later as many times as necessary. You will first be taken to a consent/parental permission process and later your child will be asked to complete an age-appropriate assent process. Parents of younger child may need to assist them with answering survey questions.
https://redcap.is.depaul.edu/surveys/?s=RCP93WXE3W

Share on facebook
Facebook
Share on twitter
Twitter
Share on whatsapp
WhatsApp
Share on google
Google+
Share on email
Email

2 thoughts on “Enrolling: Online Pediatric Research Survey”

  1. Do you want only dyads where the child is currently under the age of 17? My daughter was diagnosed with CFS/ME at age 8, died at age 28, 3 years ago. The autopsy attributed the death to dysautonomia. but that was really just a guess.

  2. Do you want only dyads where the child is currently under the age of 17? My daughter was diagnosed with CFS/ME at age 8, died at age 28, 3 years ago. The autopsy attributed the death to dysautonomia. but that was really just a guess.

Leave a Comment

Your email address will not be published. Required fields are marked *

Latest News

Sign petition To Fix ME/CFS tracking In US!

In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and asking that you sign the

Read More »

NICE announces roundtable event to ensure implementation of ME/CFS guideline

NICE announced today that it will hold a roundtable in September as the next step in the publication of the ME/CFS guideline. The roundtable will include representatives from patient organisations and charities, relevant professional societies, NHS England and NHS Improvement, NICE and the guideline committee. It aims to, “better understand the issues raised and determine

Read More »

#MEAction & 6 ME Orgs Call for CDC to Change How it Tracks ME/CFS

Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the neurological chapter of the International Classification of Diseases (ICD-10-CM).  Today, ME/CFS does not exist in the US ICD-10-CM. Instead,  most US doctors assign the code for chronic fatigue

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top