Enrolling: Online Pediatric Research Survey

As there is currently limited research on pediatric ME/CFS, the purpose of the study is to improve our understanding of the symptoms and experiences of youth with ME/CFS by conducting a research survey.
Who:

The Center for Community Research at DePaul University



When:

Ongoing


What:

We would like to invite children/adolescents (ages 5-17) with myalgic encephalomyelitis (ME) and/or chronic fatigue syndrome (CFS), as well as their parents, to participate in a research study conducted by the Center for Community Research at DePaul University. Parents must be age 18 or older and the parent and the child must speak/read English.
Participating in the study entails completing an online questionnaire (a 30-minute parent section, followed by a 30-minute child section).
Thank you for considering this research opportunity. Please feel free to contact Madison Sunnquist ([email protected]) with any questions, or if you would like to be contacted about future research opportunities related to pediatric ME and CFS.


Where:

Online


How to Participate:

The questionnaire can be accessed at the link below. You do not need to complete all of the questions at one time; you may save and return to complete the survey later as many times as necessary. You will first be taken to a consent/parental permission process and later your child will be asked to complete an age-appropriate assent process. Parents of younger child may need to assist them with answering survey questions.
https://redcap.is.depaul.edu/surveys/?s=RCP93WXE3W

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2 thoughts on “Enrolling: Online Pediatric Research Survey”

  1. Do you want only dyads where the child is currently under the age of 17? My daughter was diagnosed with CFS/ME at age 8, died at age 28, 3 years ago. The autopsy attributed the death to dysautonomia. but that was really just a guess.

  2. Do you want only dyads where the child is currently under the age of 17? My daughter was diagnosed with CFS/ME at age 8, died at age 28, 3 years ago. The autopsy attributed the death to dysautonomia. but that was really just a guess.

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