Enrolling: Online Pediatric Research Survey

As there is currently limited research on pediatric ME/CFS, the purpose of the study is to improve our understanding of the symptoms and experiences of youth with ME/CFS by conducting a research survey.
Who:

The Center for Community Research at DePaul University



When:

Ongoing


What:

We would like to invite children/adolescents (ages 5-17) with myalgic encephalomyelitis (ME) and/or chronic fatigue syndrome (CFS), as well as their parents, to participate in a research study conducted by the Center for Community Research at DePaul University. Parents must be age 18 or older and the parent and the child must speak/read English.
Participating in the study entails completing an online questionnaire (a 30-minute parent section, followed by a 30-minute child section).
Thank you for considering this research opportunity. Please feel free to contact Madison Sunnquist ([email protected]) with any questions, or if you would like to be contacted about future research opportunities related to pediatric ME and CFS.


Where:

Online


How to Participate:

The questionnaire can be accessed at the link below. You do not need to complete all of the questions at one time; you may save and return to complete the survey later as many times as necessary. You will first be taken to a consent/parental permission process and later your child will be asked to complete an age-appropriate assent process. Parents of younger child may need to assist them with answering survey questions.
https://redcap.is.depaul.edu/surveys/?s=RCP93WXE3W

Facebook
Twitter
WhatsApp
Email

2 thoughts on “Enrolling: Online Pediatric Research Survey”

  1. Do you want only dyads where the child is currently under the age of 17? My daughter was diagnosed with CFS/ME at age 8, died at age 28, 3 years ago. The autopsy attributed the death to dysautonomia. but that was really just a guess.

  2. Do you want only dyads where the child is currently under the age of 17? My daughter was diagnosed with CFS/ME at age 8, died at age 28, 3 years ago. The autopsy attributed the death to dysautonomia. but that was really just a guess.

Comments are closed.

Latest News

red rectangle with a background filled with layered red hearts. The MEAction logo and the Nourish Therapeutic Yoga logo at the top. The words Modified Movement Class in white script font. Below that in white lettering, friday, february 14th at 11am 2pm7pm

A Heart-filled Very Modified Movement Class on 2/14

♥️ Join #MEAction for a heart-filled, very modified movement class of the year on Friday, February 14th at 11am PST/2pm EST/7pm GMT. ♥️This class has been crafted specifically for people with ME. This 30 minute class will be hosted virtually. We are thrilled to partner with Shannon Williams-Bramburger of Nourish Therapeutic Yoga, who has been

Read More »
Scroll to Top