BEFORE May 12:
- Ask Congress to support people with ME. Using our one-click software, it’ll only take a few seconds. Contact Congress now. (US only)
- Sign these petitions: NIH petition (US only) | Global petition | Scottish petition (anyone can sign)
- Invite your friends or family to join a demonstration near them. Find details and links to all the events here.
- Advertise the #MillionsMissing on your social media network by sharing sample posts from the social media toolkit here or create your own using these social graphics.
ON May 12th
1) Join the #MillionsMissing on Social Media
a) Put your shoes outside with a note
On May 12th, take a pair of shoes (or several) and put them on your doorstep, lawn, or driveway with a note about what these shoes represent now that you are ill with Myalgic Encephalomyelitis. Take a photo and post it on social media (Twitter, Facebook, Instagram, etc). Include these hashtags: #MillionsMissing | #CanYouSeeMENow?
Anyone can participate, whether you are a patient or an ally expressing solidarity. You might pair the shoes with a sign that expresses what the empty shoes mean to you. Some examples: “I cannot walk to the end of my driveway” or “My brother should be here.”
b) Show Your Face
Post a selfie from your bed or home to show that your are one of the millions who are missing due to ME. You can print one of our posters , or create your own poster or sign. Don’t forget to include that hashtag: #MillionsMissing!
c) Turn the camera on yourself.
Say a little bit about yourself, and explain what you are demanding from your government. Keep it short, sweet and to-the-point. Please email firstname.lastname@example.org with a link to your video, or send it to us via WeTransfer.
d) Re-share photos from other protests, and from the #MillionsMissing Instagram with your followers on social media. Include the hashtag #MillionsMissing.
e) Add the #MillionsMissing filter to your social media profile photo using the #MissingMillions Twibbon.
2) Join a 24-hour virtual call
Join a live, 24-hour call throughout the day! Call in to hear from organizers about how their protests are going, and to connect with other activists who are protesting from their homes, as well. Join the call.
3) Tweet at your government officials
Tweet the demands and messages that your country is making to your health officials and government representatives. Here are some example tweets:
US – Tweet at NIH:
NIH’s ramp-up for ME/CFS is too slow, too small. #MillionsMissing demand adequate funding for research and clinical trials now. @NIHDirector
UK – Tweet at Jeremy Hunt
The UK has caused millions to be missing for too long. #MillionsMissing demand funding for biomedical research & education. Stop the neglect! @Jeremy_Hunt #CanyouseeMEnow #PwME
Australia – Join the letter writing campaign! Instructions here.
Tweets for Australia:
Please remove PACE material and harmful Graded Exercise Therapy recommendations from the RACGP HANDI guide for Chronic Fatigue Syndrome. See bit.ly/PEM-GETPrimer and bit.ly/2I8N09w #MillionsMissing #mecfs @DrBastianSeidel
Dan Tehan (Minister for Social Services)
Australians with ME/CFS are missing from the NDIS. Please add ME/CFS to List B of approved conditions. See bit.ly/2jzKE5A#MillionsMissing #mecfs @DanTehanWannon
Jane Prentice (Assistant Minister for Social Services and Disability Services)
Australians with ME/CFS are missing from the NDIS. Please add ME/CFS to List B of approved conditions. See bit.ly/2jzKE5A#MillionsMissing #mecfs @JanePrentice_MP