Have you been harmed by PACE? Send a letter.

Dr. Sarah Myhill has launched a campaign calling on all patients who feel that they have been harmed by the PACE trial to join her in writing to the General Medical Council (GMC), which oversees doctors in the UK. You do not have to be a UK citizen to participate.
Dr. Myhill has sent a letter of complaint about the authors of the PACE trial to the GMC. Since the burden of proof in fraud cases has apparently been relaxed in the UK, Dr Myhill is making the case that the PACE trial amounts to scientific fraud.
Seven other medical doctors are supporting this complaint but wish to remain anonymous as they are concerned about the impact of such “whistle-blowing” on their careers.
The list of harm includes, but is not limited to:

  • Those who have suffered damage as a result of CBT.
  • Those who have suffered damage as a result of GET.
  • Those who have been denied disability benefits because the physical nature of their disease has not been properly recognised and/or they have been told they have a psychological condition.
  • Those who have been denied industrial compensation for their disease because the physical nature of their disease has not been properly recognised and/or they have been told they have a psychological condition.
  • Those who have been denied referral or funding for referral to a physician specialising in the biomedical approach to treating CFS/ME.”

More information about the complaint, including a template letter for patients to send to the GMC, is available here.
The PACE trial was a deeply flawed study which has resulted in harm to ME patients around the world due to the negative impact it has had on prescribed treatments, research, services and attitudes. If you feel that you have been harmed by PACE in any way (physically, emotionally, financially or socially), please consider writing to the GMC with your evidence.

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