Have you been harmed by PACE? Send a letter.

Dr. Sarah Myhill has launched a campaign calling on all patients who feel that they have been harmed by the PACE trial to join her in writing to the General Medical Council (GMC), which oversees doctors in the UK. You do not have to be a UK citizen to participate.
Dr. Myhill has sent a letter of complaint about the authors of the PACE trial to the GMC. Since the burden of proof in fraud cases has apparently been relaxed in the UK, Dr Myhill is making the case that the PACE trial amounts to scientific fraud.
Seven other medical doctors are supporting this complaint but wish to remain anonymous as they are concerned about the impact of such “whistle-blowing” on their careers.
The list of harm includes, but is not limited to:

  • Those who have suffered damage as a result of CBT.
  • Those who have suffered damage as a result of GET.
  • Those who have been denied disability benefits because the physical nature of their disease has not been properly recognised and/or they have been told they have a psychological condition.
  • Those who have been denied industrial compensation for their disease because the physical nature of their disease has not been properly recognised and/or they have been told they have a psychological condition.
  • Those who have been denied referral or funding for referral to a physician specialising in the biomedical approach to treating CFS/ME.”

More information about the complaint, including a template letter for patients to send to the GMC, is available here.
The PACE trial was a deeply flawed study which has resulted in harm to ME patients around the world due to the negative impact it has had on prescribed treatments, research, services and attitudes. If you feel that you have been harmed by PACE in any way (physically, emotionally, financially or socially), please consider writing to the GMC with your evidence.

Facebook
Twitter
WhatsApp
Email

Latest News

Image is a sky blue rectangle, with an image of the #MEAction Maryland's logo that has the words Maryland State Chapter over an image of a lighthouse. On the righthand side if the image are the words, Join #MEAction's Marylans's #HelpMESenator Campaign in black font.

Join #MEAction Maryland’s #HelpMESenator Campaign

We are writing this article to share some exciting news! On Tuesday, September 26, ME advocates delivered copies of the book, The Puzzle Solver, by Tracie White with Ronald W. Davis, PhD, along with information about ME and Long Covid to Senators on the Hill. The books were donated by an individual living with severe ME/CFS in an effort to raise

Read More »
a collection of millionsmisisng pictures featuring people protesting over the years in red shirts and with protest signs. white dashses connect the photos. the words words "the Story of the #MillionsMissing" is in white font in the top lefthand corner with the #MEAction logo there. The words "Coming Soon" is handwriting font is in the top righthand corner.

“#MillionsMissing is our drumbeat”–Preview Party 9/24

RSVP TODAY: We are hosting a preview party for the new, virtual Home of the #MillionsMissing this Sunday, September 24th, at 12 pm PT/ 3 pm ET/ 8 pm BST! RSVP & Get Zoom Link Here We have always had to be creative in telling Our Story – the story of M.E. – to the world

Read More »

JNNP to publish edited rapid response by MEAction UK.

MEAction UK have been in communication with the BMJ and are delighted to announce that the Journal of Neurology, Neurosurgery & Psychiatry (JNNP) are publishing an edited version of our rapid response to  ‘Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis’. We

Read More »