Netherlands: Artists to showcase their work to raise awareness for ME

Anil van der Zee, 38, is a former professional ballet dancer in Amsterdam. In 2007, he contracted a viral infection, Cytomegalovirus, and never fully recovered. A few years later he was diagnosed with Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS).
He describes his transition from being a strong, vibrant dancer to a man hidden in the darkness, unable to handle any exertion, isolated from the world for more than a year, forced to live in the bathroom and closet because the stimulation from living in an old house was too much for him. Today, Anil is almost completely bedbound from ME. And yet, since ME is not recognized as a biomedical illness in the Netherlands, Anil was unable to receive any assistance from the Dutch government.
Creating art is what makes Anil feel alive, and, since he can’t create “movement” any more with his own body, he has reached out to his friends who are dancers, choreographers, singers, pianists, architects, cartoonists, writers, photographers, filmmakers, DJ’s to create a piece of art to raise awareness for ME for the month of May. He plans to share the art he has received beginning May 1st with the hashtags #undauerME, #art2cureME and #millionsmissing. 
He is also inviting anyone with ME and allies to participate in the project, and to share their expressions of art beginning May 1st with the hashtags #undauerME, #art2cureME and #millionsmissing. Anil envisions that raising awareness for ME through art will continue long past May, however, until the day that a cure is available to people with ME. 
Participate in the project:

  • Go out there and dance, choreograph, sing, act, draw, play, photograph. Whatever you feel comfortable doing. In your living room, studio, theatre or even better in the street. Maybe you have some older work you want to dedicate to the cause; create a small piece or dedicate a whole evening.

  • Share you art on social media (Facebook, Twitter, Instagram) using the hashtags #undauerME #art2cureME (also #millionsmissing #pwme #mecfs) on May 1st. *Include the text below with your social media post.

  • Ask /invite a few friends to do the same.

  • Like the Facebook page for #undauerME #art2cureME

  • Donate to one or all of these amazing groups of researchers to help find a cure.
  • Please sign this petition asking the Dutch Health Council Committee to recognize ME as a chronic, complex, multisystem disease. The petition can be signed by everyone. You do not need to be a resident of the Netherlands to sign. 
  • Learn more about Anil and at his project, #art2cureME, at his website.

Include this text with your social media post:
* I’m raising awareness for Myalgic Encephalomyelitis (ME), better known as Chronic Fatigue Syndrome (CFS) through (performance) art. ME is a debilitating, neuroimmune disease affecting 17 million children & adults worldwide.

The name CFS wrongly suggests that this illness is all about chronic fatigue or rather chronic exhaustion. But exhaustion is just one of the several disabling symptoms. The hallmark of this disease is Post Exertional Malaise (PEM), which is a severe worsening of symptoms that hits 24-72 hours after a minor exertion that can last for days, weeks or be a trigger for a relapse. You don’t just feel fatigued, you feel extremely ill.

For too long this disease has been hijacked by psychiatry because of the fatigue label but these theories/ hypothesis are slowly starting to crumble due to the fact that biomedical research is catching up. Unfortunately research is going slowy as it mostly relies on crowdfunding with a lack of federal funding globally. So we urgently need your help. Want to know how? Click on this link for more information: http://anilvanderzee.com/undauer-eng/

Facebook
Twitter
WhatsApp
Email

Latest News

DHSC released a new progress Report

DHSC has released an update on the progress of the work underway to support the development of a Delivery Plan on Myalgic Encephalomyelitis / Chronic Fatigue. This is dated from December 2022.You can read the full report using the link below: DHSC Information Bulletin Dec 22 FINAL MECFS updated

Read More »
Gold fireworks lighting up over a black background. The words, TOP HITS 2022 is in the center in white lettering. the words: #MEAction accomplished a lot last year is undernether with the #MEAction logo

Let’s Look at #MEAction’s Top Hits from 2022

As we ring in the new year, it is a wonderful time to reflect on how much #MEAction accomplished in a very busy and exciting 2022! There are so many wins to share, so we decided to narrow down the list to our TOP HITS! ——————- #MILLIONSMISSING 2022: * Bringing together the powerful Virtual #MillionsMissing

Read More »
A photo from Millions Missing Scotland of a group of 20 protestors outside the Scottish Parliament. They’re looking serious and holding signs that say Millions Missing, and a pledge signed by MSPs. Many are wearing red ME Action t-shirts. A yellow icon of a person is overlaid next to them with an arrow pointing to it and the words ‘Could it be your MSP?’ A red banner along the bottom says ‘Share your story and ask your MSPs to stand up for people with ME.’

Ask your MSPs to stand up for people with ME

Sue Webber MSP’s motion about ME will be debated in the Scottish Parliament on Thursday 2nd February – and your MSPs should be there! The motion calls on the Scottish Parliament to recognise the outcomes and recommendations of the stakeholder report on ME, including education of healthcare professionals and development of specialist services. We’re pleased

Read More »

Help keep our work going

We rely on donations from people like you to keep fighting for equality for people with ME.

Donate

Get actions alerts and news direct to your inbox

You can choose what you want to be kept up to date on.

Subscribe
Scroll to Top