#MEAction and Solve ME/CFS Gear Up for Major Congressional Push

#MEAction and Solve ME/CFS Initiative are gearing up for a major congressional action for ME/CFS in Washington, D.C. from May 16 to 18.
If you would like to join us in Washington, D.C. for meetings, let us know by April 4th so that we can make the necessary meeting arrangements with your legislators. Sign up here.
We also want to hear from you if you would like to join the advocacy effort in your home district or by phone.
Our goal will be to gain support from members of congress for multiple key ME/CFS initiatives brewing later this year and to raise awareness of our disease with federal leaders.
The May actions will include:

  • Capitol Hill ME/CFS Lobby Day: Wed., May 17  – the highlight of the overall action
  • District Congressional Meetings, May 8 – 12 (in your hometown)
  • Call-in / Write-in Campaign on May 17th

Stay tuned for further updates and additional details. Email [email protected] for more information.
 
[button_color url=”mailto:[email protected]” content=”Contact the Congressional Team” target=””]

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A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS).' A red banner is at the bottom of the photo with white writing which says, '#MEAction Scotland responds to the updated Scottish Good Practice Statement on ME.’ The ME Action Scotland logo is in the top left corner.

#MEAction Scotland responds to the updated Scottish Good Practice Statement

The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023.  The decision to update the Scottish Good Practice Statement, originally published in 2010, was a result of the Scottish stakeholder review of the 2021 NICE guideline on ME/CFS, and its recommendations for implementing the guideline in Scotland. The

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