Category Archives: Past actions


ME/CFS Advocacy Down Under in 2016

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2016 was a big year for ME/CFS advocacy. As we turn over the page to the fresh new year, the #MEAction Network Australia group reflects on some of the highlights of its advocacy efforts in 2016 ...

Clarification on NINDS role in ME/CFS Research

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After the March 8th telebriefing with the NIH, many advocates in the ME community still came away with questions. Billie Moore, NJME/CFSA Advocacy Chair, and member of the USAWGaAnd CDC's TDW Workgroup, was one of them. Though representatives of the NIH spoke at great length about the big picture of the new ME/CFS efforts ...

James Coyne Stormont talk on YouTube: PACE “outrageously bad”

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Professor James Coyne’s February 9 Belfast talk, “The Scandal of the £5m PACE Trial”, is now available on YouTube. The talk, given at Stormont, the home of the Northern Ireland Assembly, was delivered to a 40-strong audience of Members of the Legislative Assembly (MLAs), doctors, researchers and key health decision-makers. Professor Coyne ...

Complain about NIH’s Claims on CBT and GET

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Medline Plus, NIH's web site for patients, just published an article from health news distributor Healthday, based on the recent, discredited U.K. PACE study. The new article states that "cognitive behavioral therapy and graded exercise therapy are among the best available treatments for extended relief" of ME/CFS. Fortunately, if you ...

Contractor: Help CDC Develop ME/CFS Materials from IOM Report

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CDC - Collaboration to Develop ME/CFS Educational Materials Based on IOM Report The CDC is requesting quotes from business of all sizes to assist them in the development of ME/CFS educational materials based on the IOM reports. Specifically, they are looking for contractors to assist with professional, administrative, and management support ...
Photo Credit USDA

Australia: Discuss Primary Health Care for Chronic Conditions

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Australian survey on 'Better Outcomes for People with Chronic and Complex Conditions Through Primary Health Care' ...

Tell the UK government to speed up use of new treatments and tests

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This is the UK government review on how to get newly researched treatments and tests to patients more quickly and has asked patients to engage with our views ...

NHS Citizen Gather Tool for Myalgic Encephalomyelitis

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NHS Citizen Gather is a way for the public to play a more active role in NHS England’s decision making ...

Send a letter to Reinstate CDC Funding for ME/CFS

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We at the Solve ME/CFS initiative are calling for the CDC to reinstate funding for ME/CFS and we need your help! Please act now! The $5.4 million in CDC funding for ME/CFS has been stricken from the Senate’s version of the 2016 federal budget. As you can see from the graphic below, ...

UK Equality Act: share your view

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Has the Equality Act helped prevent discrimination against people with M.E. in the UK? Share your views and experience in Action for M.E.'s short survey ...