#MEACTION USA FEDERAL AGENCIES

We are fighting for research, recognition and medical education from the NIH and CDC.

We must hold the National Institutes of Health (NIH) and Center for Disease Control and Prevention (CDC) accountable for addressing the crisis of myalgic encephalomyelitis, which affects more than 1 million Americans.

The NIH has long failed to invest adequate – and equitable – resources into ME, leaving our community neglected for nearly four decades. The result has been a trickle of research investment into ME, which has scared away scientists from focusing their careers on ME/CFS.

Likewise, the CDC has failed people with ME for nearly four decades. It has failed to educate medical providers about the disease, leaving patients mired in stigma and without knowledgeable doctors to treat them. The CDC has failed to undertake the widespread epidemiological study that would advance our knowledge of how the disease affects Americans.  

Federal advocacy work is LONG and HARD. Federal agencies often work at an incremental pace and the bureaucratic intransigence can be maddening but we must SHOW UP again and again and again to hold them accountable for fixing the crisis of ME after decades of neglect. #MEAction takes an inside-outside approach to our federal advocacy. We will sit at the table and also protest in the street. 

We are ALL stakeholders in this fight. 
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Take action  in our campaigns.

#MEAction activism in the U.S.

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NIH Comes up Short Once Again

No Increase in Funding in Latest Plan for ME/CFS Collaborative Research Centers The National Institutes of Health (NIH) has announced their intent to extend the ME/CFS Collaborative Research Center (CRC)

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The Last Two Years Changed the World…

What a year 2021 was! People with ME have always faced formidable challenges: every day combatting stigma, lack of understanding from clinicians, NIH’s and CDC’s low budgetary commitments, and a world

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