MECFS Archives

Progressive Brain Changes in Patients with Chronic Fatigue Syndrome: Are our brains starved of oxygen?

May 5, 2016 8 Comments

A recent Australian study, Progressive Brain Changes in Patients With Chronic Fatigue Syndrome: A Longitudinal MRI Study finds that CFS patients meeting both Fukuda and CCC have decreased grey and white matter volumes in the areas of the brain we use for language processing. Interestingly, patients had increased grey matter volume in the supplementary motor

Add the Filter your profile pic for #MillionsMissing

May 4, 2016 6 Comments

Introducing the #MillionsMissing Profile Filter App! This app was designed to help raise awareness for the millions of people living with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). It lets you add a special theme to any picture you choose so that you can upload it to your social media profiles to show your

Dr Jarred Younger continues YouTube webinars

May 4, 2016 No Comments

Dr Jarred Younger has completed another in his ongoing series of live webinars and recorded videos on his research into ME/CFS, fibromyalgia and Gulf War Syndrome (GWS) at the University of Alabama. Dr Younger is Director of the Neuroinflammation, Pain and Fatigue Laboratory at the university. The latest webinar was Part II of a Q&A

NIH's Vicky Whittemore to speak at Invest in ME conference

May 3, 2016 3 Comments

Invest in ME (IiME) have announced that Dr Vicky Whittemore of the US National Institutes of Health (NIH) will give keynote speeches at the charity’s biomedical research colloquium and conference in London in early June. IiME described the events as “a fantastic gathering of researchers”. The charity had approached the NIH in order to invite

RCCX Project, Inc.: Explore Role of RCCX Module in Familial Chronic Illness Clusters

May 3, 2016 3 Comments

Physician and patient, Sharon Meglathery MD, describes how she developed the RCCX Theory as a result of clinical observation, being a patient herself and having another patient mention the RCCX. She explains that the full theory is on her website www.rccxandillness.com. She then talks about meeting Karen Herbst MD PhD Endocrinologist through the website and setting up an IRB to study the RCCX Theory. Finally , she describes developing a non-profit to fund research into the RCCX module’s possible connection with familial chronic illness clusters (EDS-HT, CFS, FM, Lyme, MCAS, POTS, Psychiatric Spectrum, Pain, Autoimmune/Immunological, Endocrine, Adipose, Neurological Disorders, etc.). Donations can be made at www.rccxproject.org.

Wear Your Undies on the Outside for the Open Medicine Foundation!

May 2, 2016 No Comments

But that doesn’t answer the question: what’s with the cape and tighty-whiteys?

Response to Professor Stephen Holgate: UK has “dream team” for Grand Challenge

May 1, 2016 29 Comments

The article Professor Stephen Holgate: UK has “dream team” for Grand Challenge has raised significant concerns in the patient community. As managing editor, I would like to take this opportunity to clear a few things up: 1) The article is not from Holgate, but from a longtime, British writer for #MEAction who has written over 30

Patients and professor publish biomedical ME/CFS paper

May 1, 2016 4 Comments

Professor Jonathan Edwards, along with several ME/CFS patients and a carer with scientific backgrounds have co-authored a peer-reviewed editorial on the disease that appears in the latest issue of the journal Fatigue: Biomedicine, Health & Behavior. The article is titled, The biological challenge of myalgic encephalomyelitis/chronic fatigue syndrome: a solvable problem. The paper has gained

#MillionsMissing: your shoes now have a final destination!

April 30, 2016 3 Comments

#MillionsMissing now has an address where you can send your shoes! We are asking patients who are unable to make it to the physical protest locations to please donate one pair of shoes to the address below and we will display them in their honor at the Washington, DC protest. You can send a pair of

Petition: #MillionsMissing teams up with Mary Gelpi for research funding

April 30, 2016 2 Comments

Many of us have already seen and signed Mary Gelpi’s petition asking the NIH to increase its research budget for ME/CFS funding to $100 million. Her groundbreaking petition has already netted 27,000 signatures as of this post. In Mary’s own words: I am only 31, and yet, everyday things like taking a bath exhaust me.

Tag: MECFS