Tag: MECFS

#MillionsMissing: your shoes now have a final destination!

#MillionsMissing now has an address where you can send your shoes! We are asking patients who are unable to make it to the physical protest locations to please donate one pair of shoes to the address below and we will display them in their honor at the Washington, DC protest. You can send a pair of

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Professor Stephen Holgate: UK has “dream team” for Grand Challenge

________ Note: This article has been updated to provide context about the long-running controversy over the CMRC’s inclusion of of not only biomedical scientists but of researchers who take a biopsychosocial approach to ME/CFS. Some of this context was supplied in our earlier piece announcing the livestreaming of the AGM but we accept that many

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Send your ME/CFS story on a 240-km journey

On Saturday, 7 May 2016, Mike Sutton will begin a 240-km (150-mi) journey along the Camino del Norte to raise awareness and generate more funding for ME/CFS. Mike is dedicating each day of the ten-day walk to an ME/CFS sufferer, using the hike as a platform to tell their story, share a picture of them during

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NIH to focus its 'world-class' technology and expertise on ME/CFS

A pdf of this article is now available here. On 21 April Dr Avindra Nath gave a Solve ME/CFS Initiative webinar hosted by Dr Zaher Nahle. The phrase that stood out in Dr Avindra Nath’s description of the NIH ME/CFS study was ‘world-class’. He emphasized the innovative technology the NIH has at its disposal, and

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Contribute to #May12BlogBomb in 2016!

May 12th Awareness Day is a great day to share a blog post. If you are writing a post, please consider using the tag #May12BlogBomb when you share your post on social media, and, also submitting the blog link for inclusion on the 2016 #May12BlogBomb Link List that will be collated on Sally Burch’s blog Just ME

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Centre for Welfare Reform criticises PACE trial

The Centre for Welfare Reform has published a 64-page report criticising the PACE trial and relating the study to the debate over welfare reform and cuts to disability benefits in the UK. The report’s author, George Faulkner, discusses how the biopsychosocial model has helped create a climate in Britain in which the sick are seen

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The UK CFS/ME Research Collaborative to livestream AGM on 27 April

The 2016 Annual General Meeting of the UK CFS/ME Research Collaborative (CMRC) will be livestreamed on Wednesday 27 April, from 2.45 pm to 3.30 pm British Summer Time. Viewers must preregister. The agenda of the AGM is as follows: Welcome and apologies Annual report 2014-15 Charter revisions/approval Plans for 2015-16 Membership of the Board Any other business

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Transcript: Solve ME/CFS Interviews Dr. Avi Nath

Dr. Zaher Nahle from the Solve ME/CFS Initiative recently interviewed Dr. Avi Nath, who is leading the intramural study on ME/CFS at the NIH. The intramural study on ME/CFS at the NIH has raised some concerns in the ME/CFS community: the appointment of Dr. Walitt, who has made statements implying that he views ME/CFS as

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