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Lessons from the AIDS Movement: Peter Staley interview transcripts

Peter Staley: Full interview + transcript The following is the video + transcript for the full, 70 minute interview with AIDS activist Peter Staley. You can also browse short, 2-3 minute videos. JEN: Hello and thank you for joining us for this episode of Thrive Show. I am so, so thrilled to welcome today Peter Staley

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U.S. Funding petition: help us target key states

  Is your senator a member of the Health, Education, Labor and Pensions (HELP) Committee? Do you have friends or family living in the following states?   SIGN AND SHARE YOUR STATE PETITION   ALASKA * COLORADO * CONNECTICUT * GEORGIA * ILLINOIS * KANSAS * KENTUCKY * MAINE * MARYLAND * MASSACHUSETTS * MINNESOTA

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#MEAction Launch Video

Myalgic Encephalomyelitis needs activism. There is so much work to be done in our community and so many people who want to do it, but don’t know where to start. The biggest limiting factors? Often, our own bodies. As ME/CFS patients we can be trapped and unable take part in desperately-needed awareness and activism campaigns.

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Llewellyn King: Virus Hunters Turn to Chilli Peppers

Excerpts from Llewellyn King’s article Virus Hunters Turn to Social Media — and Chili Peppers posted on Huffington Post, The Blog at 07/15/2015 3:33 pm EDT Why were two of the world’s most eminent scientific researchers sitting down to munch their way through a plate of chili peppers, flavored with Tabasco sauce, setting their mouths

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UPDATE: New Details from Open Medicine Foundation's End ME/CFS Project

Open Medicine Foundation (OMF) End ME/CFS Project This is a game-changing initiative to find a cure for ME/CFS, a devastating and life-altering disease that affects more than 2.5 million people in the U.S. alone — Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. This is the first time ever that leading world-class scientists will be putting their minds together

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Behind the Numbers of the #MEAction Funding Equality Petition

Why $250,000,000 in research funding? The #MEAction flagship Funding Equality Petition is called “Tell Congress to Support Funding Equality for ME” because we’re asking the United States Congress increase NIH Research funding for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) to $250 million per year. Most patients, doctors, and researchers in the ME/CFS community agree

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Occupy the US Department of Justice

Groups of chronically disabled patients, victims of medical abuse, will be assembling for a peaceful but passionate protest on the steps of USDOJ, 950 Pennsylvania Avenue NW, Washington, DC 20530, from June 1 until July 4.

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Q&A with the OMF Severely Ill Big Data Study

The Open Medicine Foundation’s big data study on severely ill patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome is an exciting new project designed to uncover biomarkers by studying the sickest of the sick. Want to learn more? Your pressing questions about the study are answered below.   How long will it take to do the study?

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