Today Evelien Van Den Brink spoke powerfully and brilliantly to the Committee on Petitions in the European Parliament from her stretcher. Evelien laid out both an emotional and scientific appeal for biomedical funds for ME. She ended her appeal by saying “On behalf of all patients, I am asking you, please don’t look away. We
Great news! Remember the petition that asks the EU to fund biomedical research on ME? It will be discussed at the meeting of the Committee on Petitions on October 3rd 2019 in Brussels! It is scheduled for discussion at around 11:05 CEST. Francis and Evelien have been working on this project for over a year
Hello EU! The best way to combat a hopeless situation is to act! Please help us by signing a petition that asks the EU for increased funding for biomedical research into ME. There are about 2 million ME patients in the EU. That’s only an estimate, because reliable figures aren’t even available. But we know we
It has been a big week, with over 100 public and virtual events happening across the world! We are honored and grateful to be in this fight for health equality with you. We showed the world that we are the #MillionsMissing – that we will fight for the recognition, treatment, and compassion we deserve for
We asked you, the #MillionsMissing from ME to tell us your stories. We are grateful for all that you’ve shared with us and each other. We are proud to publish your words. We won’t give up the fight. Here is the collection of your stories from 2019. *We tried our best to include all of
PRIVACY POLICY This Privacy Policy (“Policy”) sets forth our policy with respect to all information collected from you during your use of the The Myalgic Encephalomyelitis Action Network website and all content, services and products available at or through the website. The Website is owned and operated by The Myalgic Encephalomyelitis Action Network (“The ME
[pullquote align=”full” cite=”” link=”” color=”” class=”” size=””]I miss teaching. I miss making a difference.[/pullquote] Myalgic encephalomyelitis (ME) is a debilitating, chronic disease that steals so much from people’s lives. People with ME may struggle with their identity through the loss or great change in their careers. Below are stories of individuals who found their careers
Listen to the article: On 24th January, the Scottish Parliament Public Petitions Committee heard evidence on three continuing petitions, including #MEAction Scotland’s petition: PE1690 Review treatment of people with myalgic encephalomyelitis (ME) in Scotland. Petition evidence is considered in stages to enable all submissions to be studied. The previous evidence hearing raised a number of
2018 has been a big year at #MEAction! Thank you to all of you who have put forth immense efforts to improve the lives of people with myalgic encephalomyelitis (ME). #MEAction has grown over the past year in leaps and bounds, and we cannot wait to do more. We will not end our fight until all
Our community’s advocacy work end with a big finale with our meeting with the director of the U.S. National Institutes of Health (NIH)! Catch up on the latest global news from the past few months. U.S. NIH #MEAction representatives met with the National Institutes of Health (NIH) director, Dr. Francis Collins, and other key NIH leaders
