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We can’t believe it! Another $50k matching gift!

I am so thrilled to tell you that we have another $50,000 (£39,873.50) matching gift for #MEAction’s #MillionsMissing fundraiser. That means that everything you give will be matched dollar for dollar until we reach our goal of $200,000 (£159,490)! Donate Now Here are three ways you can help us maximize this matching gift: Donate  Start

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#MillionsMissing MAY 2022 Wrap Up

Thank you for sharing your stories, for illustrating our common thread so that our governments, healthcare systems, and other institutions can respond fully to the crisis of ME, Long COVID and other complex, chronic conditions. As Omar Wasow said in his #MillionsMissing speech, “We are at the cusp of newfound power.”  “That has the potential to

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New Volunteer Leadership Program Led by Experts!

We are thrilled to announce that Chimére Smith and Terri Wilder will be joining #MEAction as consultants to execute a new volunteer leadership training program funded by the Ford Foundation! We are so thrilled that we will be able to expand our volunteer programs to include robust training and provide fulfilling roles and opportunities for

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#MEAction Meets with the Department of Labor

#MEAction continues our advocacy for the #MillionsMissing in a recent meeting with the Office of Disability Employment Policy (ODEP) at the U.S. Department of Labor (DOL) where we presented on community issues affecting people with ME and Long COVID and offered policy recommendations that DOL can take to address them. President Biden’s Memorandum tasks DOL

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2022 MillionsMissing May & September

#MillionsMissing 2022 Fundraiser

#MillionsMissing 2022 DONATE 100% Amount raised $188,554 (£156,356) time until end of fundraiser 00Days 00Hours 00Minutes 00Seconds Support our #MillionsMissing 2022 Giving Campaign. Our goal: US$200,000 (£157,244) by June 15th. DONATE #MEAction is dedicated to advocating with and for people with ME. It is at the center of all we do. Whether that is through

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CDC logo surrounded by comment bubble composed out of a crowd of people as seen from overhead, #MEAction logo in righthand corner

CDC releases flawed review of ME/CFS treatments for public comment

On May 16th the U.S. Centers for Disease Control and Prevention (CDC) published a notice of request for public comments on its systematic review draft report for diagnosis and treatment of ME/CFS which will remain open until August 16, 2021.  You might not realize it from the above description, but this is the latest milestone

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MAYO CLINIC REMOVES GET AND CBT FROM CFS WEBPAGE

The Mayo Clinic recently removed harmful recommendations of Graded Exercise Therapy (GET) and Cognitive Behavioral Therapy (CBT) for myalgic encephalomyelitis (ME) from their website, a win for people with ME and their families. The site still contains problematic language and misleading information, but this recent change could help many individuals seeking care for their ME. For

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#MEAction Press Kit

#MEAction media resources: Press Kit | Press releases | #MEAction in the News | Our Photos | Our Videos | Contact Resources for reporters covering ME: What is ME? |  Selected Media Coverage of ME |  Films and books about ME Who We Are We are an international network of patients fighting for health equality for Myalgic Encephalomyelitis (ME)

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Film, Books, Music & Radio

#MEAction media resources: Press Kit | Press releases | #MEAction in the News | Our Photos | Our Videos | Contact Resources for reporters covering ME: What is ME? |  Selected Media Coverage of ME  Films, Documentaries, Television and Web Series   Feature Documentaries Title Director Distributor/Country Synopsis Run time Where to watch Unrest (2017)  Directed and produced by

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