You searched for HHS - Page 4 of 13

ME/CFS Protesters Interrupt House Appropriations Hearing

March 4, 2020 No Comments

ME/CFS Protesters Interrupt House Appropriations Hearing FOR IMMEDIATE RELEASE:Contact: Adriane Tillman [email protected] Today, #MEAction protesters wearing red #millionsmissing t-shirts interrupted NIH Director Dr. Francis Collins’s opening statement to the House Appropriations LHHS Subcommittee hearing to demand the NIH take urgent, comprehensive action to stem the crisis of ME/CFS that has been growing unchecked for more than three decades.

Status Update On #MEAction’s Congressional Work

October 11, 2019 No Comments

#MEAction’s Congressional Committee team has been very busy this year. We want to give you a status update and alert you to an ongoing action you can pursue. Appropriations Since March of this year, #MEAction, in partnership with the Solve ME/CFS Initiative and MassME/CFS & FM Association, has been working to increase funding for ME/CFS

Colorado State Chapter

September 26, 2019 No Comments

Previous Next About #MEAction Colorado got started in February 2018, a small but growing grassroots group now numbering over 100. We are dedicated to advocacy for the tens of thousands of Coloradans affected by Myalgic Encephalomyelitis*. On May 12, 2018 we held our first public event when we joined thousands worldwide to make ME/CFS Awareness

#MEAction Sends Letter to CDC Calling for Transparency and Progress

August 27, 2019 No Comments

The U.S. Center for Disease Control and Prevention (CDC) has initiated various projects focused on myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS), but there has been very little transparency or engagement with the patient community about the CDC’s overall plans, the approaches being used, or the status of the projects underway. Further, many of the

#MEAction Team

August 22, 2019 No Comments

About #MEACTION Staff The majority of #MEAction staff are people living with ME, making our team uniquely positioned to understand the real-life impacts of the government and medical community’s decisions or inaction on the disease. Shalida Dobbins (Activist and Volunteer Coordinator) Shalida Dobbins is an author and disability rights activist from Cleveland, Ohio. Born with

Congressman Jack Bergman becomes Champion for ME!

June 14, 2019 2 Comments

Up with the Marines! We are so pleased that Congressman Jack Bergman (R, MI-1), a former Marine general, has become a champion for people with myalgic encephalomyelitis (ME). Michigan advocates led by Lori Chapo-Kroger, RN, president of Pandora Org, and supported by the #MEAction Congressional team, did a video conference with Rep. Bergman several months

Erin Roediger: Igniting a Fire for ME

June 7, 2019 No Comments

As the U.S. Advocacy Manager for #MEAction, I have the great pleasure of connecting fully to my life’s purpose: to be part of igniting the fire for change in the world. While it took me a while to determine that purpose, this truth has always been a driving force in my life. From a young

Action Alert: Support A Funding Increase for ME!

June 6, 2019 No Comments

We need YOU to contact your Senators. Your voice makes all the difference. Our champion, Senator Markey, led two requests that can increase funding for ME/CFS research! 1) Requesting $9.9 million for ME/CFS programs at the Centers for Disease Control (Labor, Health and Human Services, and Education Subcommittee) 2) Adding ME/CFS to the Peer-Reviewed Medical

How to Protest Virtually with the #MillionsMissing

April 22, 2019 No Comments

Join the protest virtually during #MillionsMissing – May 5th to May 12th Use the hashtag: #MillionsMissing Start sharing photos of the demonstrations happening around the world the week of #MillionsMissing from May 5th to 12th! Share your story. Retweet away! Remember to share the fundraiser. Keep sharing stories by others. Prepare for the finale on

Celebrating Our Wins for ME!

April 11, 2019 No Comments

It has been been an exciting time for the myalgic encephalomyelitis (ME) community these past few weeks. We are in awe of the sacrifices and hard work people with ME and their allies have made to make their voices heard. #MEAction and the Solve ME/CFS Initiative organized the largest Advocacy Day ever with more than 200

Search Results for: HHS – Page 4