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Lipkin and Hornig nail #ChilliMEchallenge as donations top $0.75 million

August 19, 2015 No Comments

Three Quarters of a Million Dollars for ME/CFS Research at Columbia University! [pullquote align=”full” cite=”” link=”” color=”#E7453A” class=”” size=””]”ME/CFS is a global problem that we need to address – it robs people of the most productive years of their lives, it causes immunological dysfunction, profound fatigue, cognitive dysfunction. It really destroys peoples’ lives. It is

Lessons from the AIDS movement: it’s harder fighting for a chronic disease

July 26, 2015 4 Comments

Why it can be harder fighting for a chronic disease JEN: So I just have two more questions, one is from Julie who asks, “A big difference between ME and AIDS in the early days was that AIDS was seen as 100% fatal whereas ME only occasionally kills people outright. You commented that Americans couldn’t

Lessons from the AIDS Movement: HIV/AIDS as a model for change

July 26, 2015 12 Comments

“What makes activism work is [patients’] anger and fear…somehow you have to be able to capture that, put it in a bottle and bottle it and use it.” Larry Kramer The following comes from a report produced by HCM strategists, a public policy advocacy consulting firm: “Back to Basics: HIV/AIDS as a Model for Catalyzing Change.” What

Lessons from the AIDS Movement: Peter Staley interview transcripts

July 26, 2015 1 Comment

Peter Staley: Full interview + transcript The following is the video + transcript for the full, 70 minute interview with AIDS activist Peter Staley. You can also browse short, 2-3 minute videos. JEN: Hello and thank you for joining us for this episode of Thrive Show. I am so, so thrilled to welcome today Peter Staley

U.S. Funding petition: help us target key states

July 24, 2015 6 Comments

Is your senator a member of the Health, Education, Labor and Pensions (HELP) Committee? Do you have friends or family living in the following states? SIGN AND SHARE YOUR STATE PETITION ALASKA * COLORADO * CONNECTICUT * GEORGIA * ILLINOIS * KANSAS * KENTUCKY * MAINE * MARYLAND * MASSACHUSETTS * MINNESOTA

Update: Occupy USDOJ Demonstration in Washington DC

June 2, 2015 No Comments

The demonstration has kicked off yesterday June 1st, with a great start, at the Justice Department in Washington DC. The aim of this demonstration is to “occupy” as long as possible. Their permit is valid till July 4. Some demonstrators plan to stay a week. Others will try to stay till the end. The objective

Occupy the US Department of Justice

May 29, 2015 No Comments

Groups of chronically disabled patients, victims of medical abuse, will be assembling for a peaceful but passionate protest on the steps of USDOJ, 950 Pennsylvania Avenue NW, Washington, DC 20530, from June 1 until July 4.

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