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Email Doctor Unger about the Misinformation at CDC

May 27, 2022 4 Comments

People with ME deserve accurate & clear ME/CFS education from the Centers for Disease Control, not recycling of discredited recommendations for Cognitive Behavioral Therapy (CBT) and Graded Exercise Therapy (GET). The invited speaker at May 13th’s CDC Stakeholder Engagement & Communication (SEC) Call presented this slide on ME/CFS management. Failing the #MillionsMissing yet again! Information

CDC decides not to publish flawed ME/CFS treatments review!

December 17, 2021 5 Comments

As we enter the holidays we have a positive development to report coming out of yesterday’s ME/CFS stakeholder call with the U.S. Centers for Disease Control and Prevention (CDC). CDC has announced that it will not publish a systematic evidence review of ME/CFS treatments by the Oregon Health Science University Evidence-based Practice Center (EPC) in

CDC must act now to stop flawed review of ME/CFS treatments

December 9, 2021 3 Comments

In advance of next week’s CDC ME/CFS Stakeholder Engagement and Communication (SEC) call, #MEAction has sent a letter to Chronic Viral Diseases Branch Chief Dr. Elizabeth Unger requesting her to clearly and directly address our four key objections to publishing a flawed evidence review of ME/CFS treatments that CDC commissioned. Read Letter The review wrongly

#MEAction & 6 ME Orgs Call for CDC to Change How it Tracks ME/CFS

August 23, 2021 1 Comment

Together with six other organizations, we have submitted a proposal to the National Center for Health Statistics (NCHS) to add myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to the neurological chapter of the International Classification of Diseases (ICD-10-CM). Today, ME/CFS does not exist in the US ICD-10-CM. Instead, most US doctors assign the code for chronic fatigue

Over 7K Sign #MEAction’s Response to Flawed CDC Review

August 16, 2021 1 Comment

Over 7K sign #MEAction’s response to CDC

Sign on to #MEAction’s response to flawed CDC review

August 2, 2021 14 Comments

MEAction Response to CDC #MEAction has released a draft response to the CDC’s flawed systematic evidence review on ME/CFS treatments. Sign our form by August 15, 2021 to have your name added to #MEAction’s response before we formally submit it as a public comment on August 16. We need to demonstrate strong community opposition in

microphone over blurred photo of room with people meeting

Town Hall Q&A on #MEAction response to CDC Review

August 1, 2021 No Comments

Attend #MEAction town hall meeting on Monday, August 9th for a Q&A on our draft response to the CDC systematic evidence review for ME/CFS treatments. —————–Meeting URLhttps://bluejeans.com/422344930/2884 Meeting ID422 344 930 Participant Passcode2884 Want to dial in from a phone?Dial one of the following numbers:+1.408.317.9253 (US (Primary)) Enter the meeting ID and passcode followed by

CDC releases post-COVID guidance: 4 takeaways for ME/CFS

June 16, 2021 3 Comments

The U.S. Centers for Disease Control and Prevention (CDC) has published interim guidance for evaluating and caring for patients with post-COVID conditions.* The CDC will present this guidance to clinicians on a public COCA Call on Thursday, June 17th from 2:00 PM – 3:00 PM ET. This guidance deserves a detailed review of what has

CDC releases flawed review of ME/CFS treatments for public comment

June 4, 2021 18 Comments

On May 16th the U.S. Centers for Disease Control and Prevention (CDC) published a notice of request for public comments on its systematic review draft report for diagnosis and treatment of ME/CFS which will remain open until August 16, 2021. You might not realize it from the above description, but this is the latest milestone

Town hall - CDC draft evidence review of ME/CFS treatments Jun 23rd 3pm ET

#MEAction Town hall on CDC draft evidence review of ME/CFS treatments

June 3, 2021 No Comments

Update: slide deck for town hall The U.S. Centers for Disease Control and Prevention (CDC) published a notice of request for public comments on its systematic review draft report for diagnosis and treatment of ME/CFS which will remain open until August 16, 2021. To learn more about the CDC draft evidence review and #MEAction advocacy

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