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Advocacy Works: Fighting for ME/CFS and Long COVID in Minnesota
The launch of the Minnesota Home Help Navigation Program is proof that advocacy works.
Sep 17, 20252 min read
Inside Our Playbook: 6 Strategic Choices Behind Our Minnesota Pilot
With the Minnesota Home Help Navigation Program now underway, here’s an inside look at the strategic choices in our patient-led playbook.
Sep 17, 20253 min read
Guiding Minnesotans Living with Long COVID & ME/CFS to Secure In-Home Help
Pilot program offers free support for Minnesotans with energy-limiting illness
Sep 3, 20252 min read
New Staff Introduction: Linda Pozen
Meet #MEAction’s Newest Staff Member- Linda Pozen
Sep 3, 20252 min read
Celebrating A Big Senate Win
#MEAction has been working hard with #NotJustFatigue to advocate for the ME/CFS Research Roadmap and it has paid off! The Senate Appropriations Committee included the roadmap in their report!
Aug 1, 20251 min read
#MEAction’s Pacing Narrative Data Gets Published in First Paper + MORE Science updates!
We are excited to share some promising updates about the scientific work #MEAction is leading to advance the field of ME/CFS research.
Jul 22, 20253 min read
Severe ME Artists Project 2025
Learn more about this year’s project
Jul 10, 20254 min read
Press Release: UNC Closes its Long COVID Clinic – the Only One in the State
The sole Long COVID clinic of North Carolina closed last week after its federal funding ran out.
Jun 23, 20252 min read
Pillow Writers en Español
#MEAction is thrilled to announce Pillow Writers Network has expanded once again! This time with a dedicated group for Spanish speakers.
Jun 19, 20256 min read
Happy Juneteenth + Black Disabled Authors Reading List
In celebration of Juneteenth, we have put together a list of books by disabled Black authors.
Jun 18, 20252 min read
Minnesota’s Long COVID Funding Saved from Elimination
The Minnesota Department of Health's Long COVID program has been saved from elimination!
Jun 11, 20253 min read
Millions Missing Scotland 2025 raises a red alert
On Wednesday 14th May 2025, #MEAction Scotland held Millions Missing Scotland outside the Scottish Parliament in Edinburgh.
Jun 1, 20252 min read
Sick and Disabled People Protest Medicaid Bill at Capitol
Sick and disabled people are protesting today, Monday, May 12th at the Capitol to tell Congress that forcing chronically ill people to work in order to keep their Medicaid healthcare will only make our country sicker and more reliant on government services.
May 12, 20254 min read
SOS: #MEAction Responds to Urgent Crisis – MN Long COVID Funding At Risk
We cannot allow our elected officials to harm chronically ill and disabled people with rampant cuts. This is yet another SOS moment for people in our community.
May 7, 20252 min read
Research Roadmap Petition
We reached 7,000 signatures on our last letter. This time, our goal is 10,000. Please sign the letter today and share it with your friends and family.
May 7, 20251 min read
Share This SOS Image On Your Socials
Share this message about #MillionsMissing with your own networks.
Apr 28, 20251 min read
Millions Missing Scotland 2025: Red alert for ME
#MEAction Scotland will be outside Scottish Parliament in Edinburgh on Wednesday 14th May, from 12–2pm, calling on the Scottish Government to act on its promises.
Apr 27, 20255 min read
#MEAction: Congress Is Hearing from Us
#MEAction has been hard at work connecting individuals to their elected officials to talk about the ME/CFS Research Roadmap, Medicaid, and telehealth.
Apr 23, 20252 min read
#MEAction Georgia Volunteer, Maggie Boxey, Speaks at TEDxOjai
#MEAction Georgia's Maggie Boxey gave a TEDx talk about her experience as a person with ME.
Apr 21, 20254 min read
SOS: Save our Science
It’s time to send out our SOS signal if we want to have funded research.
Apr 11, 20256 min read
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