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Let’s Use Spooky Season To Advocate for Medicaid & the ACA
Join our social media campaign to advocate for Medicaid and ACA.
Oct 21, 20251 min read
2nd Annual RECOVER-TLC Research Workshop : A summary
Summary review of the recent RECOVER TLC Workshop
Oct 20, 20256 min read
Apply Today - Writers Guild Initiative Writing Workshops
WGI Workshops start in November. Apply today!
Oct 10, 20252 min read
NOW AVAILABLE: Near- Life Experiences: The Pillow Writers Anthology, Issue 2
Issue 2 features poems, stories, and essays by 28 writers who call themselves the Pillow Writers and share more than 100 pages of their poetry, fiction and essays.
Oct 3, 20256 min read
Advocacy Works: Fighting for ME/CFS and Long COVID in Minnesota
The launch of the Minnesota Home Help Navigation Program is proof that advocacy works.
Sep 17, 20252 min read
Inside Our Playbook: 6 Strategic Choices Behind Our Minnesota Pilot
With the Minnesota Home Help Navigation Program now underway, here’s an inside look at the strategic choices in our patient-led playbook.
Sep 17, 20253 min read
Guiding Minnesotans Living with Long COVID & ME/CFS to Secure In-Home Help
Pilot program offers free support for Minnesotans with energy-limiting illness
Sep 3, 20252 min read
New Staff Introduction: Linda Pozen
Meet #MEAction’s Newest Staff Member- Linda Pozen
Sep 3, 20252 min read
Celebrating A Big Senate Win
#MEAction has been working hard with #NotJustFatigue to advocate for the ME/CFS Research Roadmap and it has paid off! The Senate Appropriations Committee included the roadmap in their report!
Aug 1, 20251 min read
#MEAction’s Pacing Narrative Data Gets Published in First Paper + MORE Science updates!
We are excited to share some promising updates about the scientific work #MEAction is leading to advance the field of ME/CFS research.
Jul 22, 20253 min read
Severe ME Artists Project 2025
Learn more about this year’s project
Jul 10, 20254 min read
Press Release: UNC Closes its Long COVID Clinic – the Only One in the State
The sole Long COVID clinic of North Carolina closed last week after its federal funding ran out.
Jun 23, 20252 min read
Pillow Writers en Español
#MEAction is thrilled to announce Pillow Writers Network has expanded once again! This time with a dedicated group for Spanish speakers.
Jun 19, 20256 min read
Happy Juneteenth + Black Disabled Authors Reading List
In celebration of Juneteenth, we have put together a list of books by disabled Black authors.
Jun 18, 20252 min read
Minnesota’s Long COVID Funding Saved from Elimination
The Minnesota Department of Health's Long COVID program has been saved from elimination!
Jun 11, 20253 min read
Millions Missing Scotland 2025 raises a red alert
On Wednesday 14th May 2025, #MEAction Scotland held Millions Missing Scotland outside the Scottish Parliament in Edinburgh.
Jun 1, 20252 min read
Sick and Disabled People Protest Medicaid Bill at Capitol
Sick and disabled people are protesting today, Monday, May 12th at the Capitol to tell Congress that forcing chronically ill people to work in order to keep their Medicaid healthcare will only make our country sicker and more reliant on government services.
May 12, 20254 min read
SOS: #MEAction Responds to Urgent Crisis – MN Long COVID Funding At Risk
We cannot allow our elected officials to harm chronically ill and disabled people with rampant cuts. This is yet another SOS moment for people in our community.
May 7, 20252 min read
Research Roadmap Petition
We reached 7,000 signatures on our last letter. This time, our goal is 10,000. Please sign the letter today and share it with your friends and family.
May 7, 20251 min read
Share This SOS Image On Your Socials
Share this message about #MillionsMissing with your own networks.
Apr 28, 20251 min read
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