Freakin' Frail Campaign
- #MEAction
- 12 hours ago
- 1 min read
New Medicaid work rules will take effect at the end of 2026. Our care and support systems have long been rigged against disabled people, and these new paperwork rules will push even more sick people off the care and support they need.
Please sign our letter to the HHS Secretary urging him to recognize people with ME/CFS and Long COVID as “medically frail” so that their access to Medicaid is protected.
Why Medically Frail
Congress has mandated that Medicaid recipients work 80 hours a month unless they can prove they are “medically frail,” or risk losing their Medicaid. Attempting to meet an 80‑hour work requirement for most people with ME/CFS and Long COVID will only worsen their illness, and may cause permanent harm.
Before states start enforcing these new work rules, the HHS Secretary must issue guidance that will shape how states decide who counts as "medically frail." Please sign our letter to HHS Secretary today!
Why Freakin’ Frail
This letter is the first step in #MEAction's Freakin' Frail campaign to protect our community’s access to Medicaid. In 2026, we will mobilize grassroots pressure, at both federal and state levels, to mitigate the harm to our communities when Medicaid work requirements are implemented.
Join #MEAction’s Freakin’ Frail campaign and fight this rigged system to make it better for everyone!
This campaign is one of the many reasons #MEAction is vital to the ME and Long COVID community, but we can’t do this work without your financial support. Please donate to #MEAction today, so we can continue to fight for you. Thank you.