NEWS

Good news: Congress has extended Telehealth until January 31,2026 as part of a deal to end the government shutdown.This is not a permanent solution. So, we must continue to put pressure on Congress to make telehealth for Medicare permanent. Join #MEAction in putting pressure on Congress to make Telehealth for Medicare permanent! Call your Member now using our call script, and tell Congress to stop messing around with your healthcare!For people with ME and Long COVID, Teleheal

#MEAction is thinking of our community during these unpredictable times.You’re doing your best. Reaching out for help takes courage and vulnerability. You deserve to feed yourself and anyone you care for with dignity. Finding help isn’t charity. It’s survival, community, and resilience.Here are some resources to help keep your fridge stocked: Call 2-1-1 (just dial 211) for your zip code — they’re a free hotline linking to local food pantries, soup kitchens, and emergency food

This year has been hard- we know because we have been on the ground fighting for ME and Long COVID every single day. In 2025, #MEAction has accomplished a lot. Just take a look below.1. Advocating for funding for the ME/CFS Research Roadmap: Secured a meeting with the NIH Director, and got the roadmap included in Congress’ draft appropriations language.2. Helping Minnesotans with ME/CFS and Long COVID apply for home care support by launching the Minnesota Home Help Navigation

WGI Workshops start in November. Apply today!

Issue 2 features poems, stories, and essays by 28 writers who call themselves the Pillow Writers and share more than 100 pages of their poetry, fiction and essays.

The launch of the Minnesota Home Help Navigation Program is proof that advocacy works.

With the Minnesota Home Help Navigation Program now underway, here’s an inside look at the strategic choices in our patient-led playbook.

Pilot program offers free support for Minnesotans with energy-limiting illness

Meet #MEAction’s Newest Staff Member- Linda Pozen

#MEAction has been working hard with #NotJustFatigue to advocate for the ME/CFS Research Roadmap and it has paid off! The Senate Appropriations Committee included the roadmap in their report!

We are excited to share some promising updates about the scientific work #MEAction is leading to advance the field of ME/CFS research.

Learn more about this year’s project

The sole Long COVID clinic of North Carolina closed last week after its federal funding ran out.

#MEAction is thrilled to announce Pillow Writers Network has expanded once again! This time with a dedicated group for Spanish speakers.

In celebration of Juneteenth, we have put together a list of books by disabled Black authors.

The Minnesota Department of Health's Long COVID program has been saved from elimination!

On Wednesday 14th May 2025, #MEAction Scotland held Millions Missing Scotland outside the Scottish Parliament in Edinburgh.

Sick and disabled people are protesting today, Monday, May 12th at the Capitol to tell Congress that forcing chronically ill people to work in order to keep their Medicaid healthcare will only make our country sicker and more reliant on government services. 

We cannot allow our elected officials to harm chronically ill and disabled people with rampant cuts. This is yet another SOS moment for people in our community.

Share this message about #MillionsMissing with your own networks.