Values & Policy Archives

Diagnostic Criteria: Researchers and Clinicians Survey Results

November 21, 2019 12 Comments

Last month, we presented information about the diagnostic criteria, exploring their similarities and differences. Click here to read that article. This week, we’re reporting on a survey we sent to ME-literate researchers and clinicians. We contacted clinicians who treat or have treated people with myalgic encephalomyelitis (ME) as their main patient population, and researchers who study

Demystifying the Diagnostic Criteria for ME and Related disease

November 14, 2019 56 Comments

Additions and corrections Initially we stated that ICC requires three months before diagnosis; this was in error. ICC specifies that the disease can be diagnosed immediately. This has been corrected in the text and within the pdf comparing criteria. One reader pointed out a very useful misconception regarding different criteria for different purposes, which

Race, Ethnicity and M.E.: Why We Need to Build a More Inclusive Movement and Why it Matters.

October 14, 2019 6 Comments

Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of principles and values as well

Are you Disabled? How does ME fit into the Disabled People’s Movement?

October 9, 2019 15 Comments

Why We Must Build Coalitions to Strengthen our Movement

October 6, 2019 No Comments

Inside / Outside Activism: Why We Must Shout in the Streets and Sit at the Table.

October 3, 2019 3 Comments

Why Civil Disagreement and Respect are Essential to the ME Movement

September 29, 2019 1 Comment

VALUES & POLICY INITIATIVE Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of principles and values as well

Why We Must Build an Open, Grassroots Movement

September 25, 2019 3 Comments

Listen to the article: Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in

Join Our Values and Policy Initiative

September 24, 2019 1 Comment

Listen to the article: On behalf of #MEAction International’s board, staff, volunteers and everyone who form a part of our wider community, I want to welcome and invite you to participate in what we are calling “Values and Policy,” an ambitious, six-month initiative to learn, engage, debate and ultimately devise the core tenets of

Values & Policy: Outcome of our November Poll

September 24, 2019 2 Comments

Listen to the article: #MEAction’s Values & Policy initiative has evolved out of the need to better clarify our values, tactics and positions so that we are more unified in our work as a large, diverse community. As a first step, we asked the community last November to take a survey to indicate what

Category: Values & Policy