COVID-19 and Long haul COVID Resources

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Category Archives: Science

Photo of US ME/CFS Clinician website. Blue Banner with title at top and a question that reads What is ME/CFS?

All Doctors Should Go To This Website For ME Information!

We are thrilled to share that The US ME/CFS Clinician Coalition has launched a website to provide clinicians with expert information on the diagnosis and management of myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS). The website includes the basics of clinical management, diagnosis and management, comorbid conditions, and resources on helping ...

NIH Director: long haulers “decided to take matters into their own hands”

NIH Director Francis Collins just published a blog post highlighting the plight of COVID-19 “long haulers” and the role of citizen-science efforts at the Body Politic COVID-19 Support Group in compiling the first detailed patient survey of long COVID and analyzing the results. #MEAction reported on the survey results in ...

Announcing a special journal issue dedicated to ME

People with myalgic encephalomyelitis (M.E.) don’t hear good news on the research front as often as they should. That’s why we are thrilled to announce the scientific journal WORK: a Journal of Prevention, Assessment & Rehabilitation has devoted an issue solely to M.E. research. Topics will include documenting disability by ...

Dr. Anthony Fauci says that post-covid syndrome “is highly suggestive of myalgic encephalomyelitis”

This article was updated on July 27, 2020 to reflect Dr. Anthony Fauci's repeated statements on this topic. Dr. Anthony Fauci is repeatedly warning the public that Covid-19 patients are at risk of developing myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) after being infected with the virus. As of ...
DNA strands surround stamp that says Funded

£3.2million granted for largest ME/CFS DNA study ever

Funding for the world’s largest genetic study into myalgic encephalomyelitis (ME), led by a partnership of patients and scientists, has been announced. Thanks to £3.2 million funding, awarded jointly by the Medical Research Council and National Institute for Health Research, work can begin on DecodeME, the ME/CFS DNA study that ...
UK ME/CFS Biobank CureME logo

The UK ME/CFS Biobank: a rich resource of samples and data

It is a strange time to be writing about the work of the UK ME/CFS Biobank (UKMEB); as I write, our office has been closed for over two months and clinical visits have been paused indefinitely; samples cannot currently be distributed. COVID-19 has created many challenges to our work and ...

Washington Post Editorial Says Some COVID-19 Patients Will Develop ME

The Washington Post published an editorial last Saturday about how researchers are warning that COVID-19 may lead to long-term, debilitating illnesses, like myalgic encephalomyelitis (ME), in some patients. The editorial was written by former Washington Post reporter, Brian Vastag, and #MEAction co-founder, Beth Mazur, both of whom have ME. Many ...

Citizen science highlights non-recovery in COVID-19 patients

Recently, #MEAction received what may be the first, participant-led analysis of COVID-19, entitled What Does COVID-19 Recovery Actually Look Like? An Analysis of the Prolonged COVID-19 Symptoms Survey by Patient-Led Research Team. The Body Politic COVID-19 Support Group surveyed over 600 participants who had experienced/were experiencing COVID-19 symptoms for at ...

Researchers Expect COVID-19 will Cause Surge of Chronic Illness, including ME

Since a new coronavirus emerged from Wuhan, China late in 2019, some 3.8 million cases and 265,000 deaths have been reported world-wide. Governments are focused on treating patients acutely sick with COVID-19, the disease caused by the new virus SARS-CoV-2, and slowing the spread of the virus. However, a second ...

Equip yourself to fight disinformation!

Over the last many months, social media platforms like Twitter, Facebook, and YouTube have been flooded with disinformation about COVID-19. We wanted to make you aware of the problem, equip you with tools for how to recognize and respond to disinformation, and enlist your help keeping our community safe. According ...