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Category Archives: Science

Journal Publishes Article about ME Biobank

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Frontiers in Neurology, an open-access journal, published an article about the UK ME/CFS Biobank this week. This narrative paper describes the journey of how people with Myalgic Encephalomyelitis /Chronic Fatigue Syndrome (ME/CFS) came together with a multidisciplinary team of researchers to conceptualize and establish the biobank, which provides a critical resource ...

Study Shows Red Blood Cells Less Deformable in ME Patients – Possible Biomarker

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Written by Ronald W. Davis, PhD This paper documents that red blood cells are less deformable in ME/CFS patients compared to healthy controls. It potentially could be a biomarker, and we are proceeding to design new devices that will make a clear distinction between patients and healthy controls. These devices will ...

Study Examines Link between Immune Dysfunction and Metabolism in ME

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This article was first published on ME Australia.  An international collaboration of scientists, including Fane Mensah, Jo Cambridge and Australia's Chris Armstrong, investigated the relationship between CD24 expression and B cell maturation and found CD24 expression on B cells is related to energy metabolism and that its role differs between B ...

Research: supporting advocacy orgs yields huge payoffs

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This Giving Tuesday, I've got some good science to show why you should donate to #MEAction and other advocacy organizations! The study Disease Politics and Medical Research Funding: Three Ways Advocacy Shapes Policy sets out to discuss single-disease interest groups and their influence on US politics: "This article explores their effects on federal ...

Sept & Oct — Research Roundup

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The end of September was a whirlwind! Between the CDC's website work, the CDC's awarding of a sole contract, the planning sessions for the NIH meeting, and the Stanford symposium, there wasn't much time to devote to breaking down the science.  If you'd like to see a quick run-down of ...

Enrolling: Online Pediatric Research Survey

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As there is currently limited research on pediatric ME/CFS, the purpose of the study is to improve our understanding of the symptoms and experiences of youth with ME/CFS by conducting a research survey. Who: The Center for Community Research at DePaul University When: Ongoing What: We would like to invite children/adolescents (ages 5-17) with myalgic encephalomyelitis ...

UPDATE: Cochrane Has NOT Removed “Exercise Therapy for CFS” Review

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It appears that Cochrane will NOT temporarily remove a review from its database that claims exercise therapy is effective for chronic fatigue syndrome (CFS) and myalgic encephalomyelitis (ME), as a report in Reuters had indicated last week. Instead, Cochrane editors have added an editor's note (that is all but invisible unless you ...

Cochrane Temporarily Removes Review of “Exercise Therapy for CFS”

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Cochrane has temporarily removed a review from its database that claims exercise therapy is effective for chronic fatigue syndrome (CFS) and myalgic encephalomyelitis (ME). Cochrane is a database of medical reviews and meta-analyses, which medical providers around the world rely on for diagnosing and treating disease. Their review, Exercise Therapy for ...

UK: More than 250 GPs Attended ME Workshop at the RCGP Conference

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A week after the recent RCGP Annual Primary Care Conference & Exhibition held in Glasgow on the 4th – 6th October, it seems appropriate to reflect on the impact of the conference on educating GPs about myalgic encephalomyelitis (ME). The RCGP Conference is the must-attend event of the year for GPs ...

Enrolling: White Matter Evaluation with Stanford University

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Researchers at Stanford University have discovered that the brains of patients with ME display abnormalities in the white matter within the right hemisphere. It is crucial to further the research involved with these findings as they may lead to more definitive diagnoses of ME. Who: Dr. Montoya and Dr. Zeineh at the Stanford School of Medicine When: Ongoing What: Replication ...