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Category Archives: Research

Enrolling: Cornell Exercise Testing Study

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Who: Cornell Center for Enervating Neuroimmune Disease What: The Center is collecting information from both ME patients and sedentary controls. You will first have a quick phone call to determine eligibility. If eligible, you will meet with a doctor (theirs or yours) to be examined or for blood and urine tests. Then you will complete questionnaires. ...

The heart of ME? Lipkin’s Collaborative Probes the Impact of Exertion

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Simon McGrath is the author of the ME/CFS Research Review blog. The hallmark symptom of ME/CFS is post-exertional malaise (PEM), a prolonged, grim and disproportionate response to exertion. While Dr W. Ian Lipkin’s NIH-funded Collaborative – the Center for Solutions for ME/CFS – is focusing primarily on how problems in patients’ gut ...

The Microbiome Hypothesis: Lipkin’s Collaborative, Part 1

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Author of the ME/CFS Research Review blog, Simon McGrath, has written an article about Dr W. Ian Lipkin's theory that the body’s response to changes in the gut could be what’s driving ME/CFS for at least some patients. A gut reaction is the problem in ME/CFS – that’s the main idea being pursued ...

July 2018 — Research Roundup

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July was a big month for scientific research in ME!  Many of the most well-known researchers and clinicians had papers this month including Klimas, Lipkin, Hornig, Levin, Peterson, Montoya, Julie Newton, Broderick, and Marshall-Gradisnik.  There were studies in epigenetics, NK cell function, the HPA axis, robots for schoolchildren with ME, ...

Enrolling: Bateman-Horne Center Biomarker Study

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Help advance biomarker research! The Bateman-Horne Center is actively recruiting patients and healthy controls who are eager to participate by providing samples and information. This is then used in ME/CFS and FM research to discover biomarkers, improve diagnosis, and advance treatment ...

Do you use a wheelchair? A team of engineers needs your input.

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The UC San Diego Smart WheelChair team is asking ME patients to fill out a short google questioner about how ME impacts their mobility and how they can best design a wheelchair accessory that would support your independence.  The team of undergraduate engineering students are working to design an affordable, open ...

Learning about ME at the Dysautonomia Conference

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#MEAction sent two representatives, Beth Mazur and Jaime Seltzer, to attend the 2018 Dysautonomia International Conference in Nashville last month. This was an opportunity for our community to join forces and gain insight regarding the commonalities in triggers, symptoms, diagnoses, and methods of treatment between ME and dysautonomia. Dysautonomia refers ...

Ron Davis Receives $2.5 Million Grant from NIH

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Dr Ron Davis and his team at the Stanford Genome Technology Center have received a large research grant from the National Institutes of Health (NIH) that will fund research for 5 years at $500,000 a year and will involve 15 collaborators, 9 of which have never worked in the ME/CFS field before ...

U.S. – Center for Solutions for ME/CFS Seeks Applicants for Community Advisory Committee

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The Center for Solutions for ME/CFS is seeking applications for the Community Advisory Committee. The deadline is Monday, July 9. Apply here: CAC application, available in Google Forms. The Center for Solutions for ME/CFS (CfS for ME/CFS) is a multi-institutional, inter-disciplinary research center dedicated to understanding the biology of ME/CFS, and developing diagnostic ...

Australia: Mason Foundation Explores Funding ME and CFS Biobank

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Most of Australia’s medical research funding for ME and CFS comes from the Mason Foundation, who are currently looking at whether they will fund a biobank or a patient registry for Myalgic Encephalomyelitis and/or chronic fatigue syndrome samples. Recently the Mason Foundation updated stakeholders on the decision-making process. This is important ...