×

Category Archives: Awareness

Join the fight against stigma and pseudoscience in New York

/ by / 0 Comment
This weekend, the New York State Psychiatric Institute is hosting a conference on psychosomatic illness at Columbia University Medical Center -- and they invited Per Fink to speak.  If you have watched Unrest, you know that Fink’s clinic was responsible for the involuntary institutionalization of Karina Hansen, a Danish young ...

#MEAction Welcomes U.S. Advocacy Manager

/ by / 2 Comments
We at #MEAction are so excited to welcome Erin Roediger as our new U.S. Advocacy Manager! We are thrilled that with Erin’s wealth of healthcare advocacy, volunteer coordination, and electoral campaign experience, we will be able to expand our congressional outreach program in concert with our partner organizations - the Solve ...

Stop Per Fink from Spreading Misinformation about ME: Sign the Petition

/ by / 1 Comment
The Danish physician, Per Fink, is traveling to the United States to speak about his unscientific and dangerous idea that myalgic encephalomyelitis (ME) is a psychosomatic illness. Per Fink has been invited to speak at a psychosomatic conference at Columbia University in New York City on Oct. 20th. Columbia University will reward medical providers who come to hear Per Fink ...

NOW Adopts Resolution for ME

/ by / 3 Comments
The National Organization for Women (NOW) adopted a resolution for diseases and conditions affecting large numbers of women, including myalgic encephalomyelitis (ME), at its conference this past July. The resolution is now live on NOW's website, read the full resolution below. The resolution recognizes the need to increase research funding, raise awareness ...
Individuals who were lied to and misrepresented by Netflix’s Afflicted include (left to right): Jake, Pilar, Jamison, Jake & Bekah, Jill & Janine

Open Letter Demands Removal of Netflix’s “Afflicted” – Sign the Petition

/ by / 1 Comment
On September 18th, more than 40 writers, activists, artists, filmmakers, physicians, and scientists came together to write an open letter to Netflix to request that Afflicted be immediately removed from the service. "We are deeply concerned about its unethical treatment of its subjects and its many factual errors and omissions," states ...

Scottish Lib. Dems Pass Motion for ME, with Amendment

/ by / 2 Comments
ME history was made this week in the historic capital of Scotland when delegates at the Scottish Liberal Democrats autumn conference voted to support conference motion SC5: Investing in ME - Recognition, Research, and Education. So it’s official, the motion, drawn up in consultation with #MEAction Scotland, is now party ...

Scottish Liberal Democrats will Vote on Motion for ME

/ by / 1 Comment
At the Scottish Liberal Democrats conference this Saturday in Dunfermline, party member Emma Walker will present a motion about Myalgic Encephalomyelitis (ME), focussing on the need for biomedical research and the removal of Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT) as treatments for ME in Scotland. If it ...

Netflix Docuseries “Afflicted” is Terrible

/ by / 33 Comments
Read a response from some of the subjects of Afflicted: "The Truth Behind Netflix’s ‘Afflicted.'" We anxiously awaited the release of Netflix's docuseries, "Afflicted," on Aug. 10 and are appalled by the dismissive, psychosomatic lens through which the patients are ultimately portrayed. The casting director had said that the “intention is to look ...

Watch Jen Brea’s Powerful Award Speech from the 2018 NOW Conference

/ by / 7 Comments
At the National Organization for Women (NOW) conference held this past July, #MEAction's co-founder and voluntary executive director, Jennifer Brea, was awarded the Victoria J. Mastrobuono Award for Women's Health for her work championing the cause of people with myalgic encephalomyelitis through #MEAction, and her documentary film, Unrest. The award is given annually to ...

#MEAction UK Activist Speaks at the International Deaf & Disabled People’s Solidarity Summit

/ by / 3 Comments
Article written by Sian Leary and Nathalie Wright | Photo credit: Paula Peters On 22nd July, Deaf and Disabled people from around the world gathered in East London in solidarity to discuss countering oppression and coordinating resistance, especially in the light of austerity and the rise of the far right.   Nathalie Wright ...