This year, we are excited to announce that #MillionsMissing will be held in two parts: May and September! #MillionsMissing is about demonstrating our community’s collective refusal to let the stories of people with ME be erased, or access to healthcare and medical research blocked. We protest against all barriers to justice for the growing community
Please help #MEAction UK and #MEAction Scotland by taking part in this survey to find out the effect that Covid-19 has on people with ME. Take the survey We are working in collaboration with Action for ME to gather evidence on the impact of Covid-19 on our community. We have heard many stories from people
Who: Dr. Nina Muirhead and the Study Team at Cardiff University, United Kingdom have developed a survey with two questionnaires, one for the patient and one for a life partner or family member. If you cannot be together to complete it, you can save and return. What: An international research study, looking at the impact
Today is International Women’s Day! #MEAction is joining in the IWD #ChooseToChallenge theme to challenge gender bias in medicine and medical research. You can participate by creating and sharing your own #ChooseToChallenge image, share one of the ones we created for you, and reading /watching /sharing one or all of the resources we compiled for
We are thrilled to share that The US ME/CFS Clinician Coalition has launched a website to provide clinicians with expert information on the diagnosis and management of myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS).
What a Summer for Advocacy and Education! We know the summer isn’t over yet, but A LOT has been happening with ME advocacy and education in the United States and the United Kingdom, and we want to make sure you are up to date, in the loop, and ready for next steps! National Institutes of Health (NIH)
#MEAction hosted a seminar for post-COVID-19 “long haulers” on Friday, August 7, to learn more about ME/CFS as a potential diagnosis after viral infection, in partnership with Body Politic and the COVID-19 Working Group New York. Watch the seminar now!
Last week was inspiring and eventful! We had a huge turn-out for our US Advocacy Meeting about the National Institutes of Health’s (NIH) response to long Covid and ME, we co-hosted and organized a seminar for those with long Covid with amazing organizations and activists, #MEAction UK wrote an open letter to the National Institute for Health
Let us honor the most severe in our community today, Severe ME Day, Saturday, August 8th.