Category: Global

#MillionsMissing: Artists & Storytellers

Over the years, we’ve seen incredible pieces of art from people with ME. Many of these artworks move us, galvanize us, and let us into the inner world of the artist that we would otherwise never see. ME separates us from our lives and loved ones – from work, from parties, from basic errands like

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Evelien Van Den Brink laying down, hopefully and clearly looking at the camera.

The EU Committee on Petitions is preparing a resolution on ME

Hi everyone! Time for an update: We have super important news! The Committee on Petitions is preparing a resolution on ME! This is the first-ever resolution on ME in the EU and if adopted, this means a great leap forward towards our goal of attaining funding for biomedical research on ME.  It is planned to

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Cards for Koroshetz: Send a Holiday Card to NIH Demanding Action!

This holiday season, the #MEAction community plans to flood the mailbox of the U.S. National Institutes of Health (NIH) with holiday cards calling for NIH NINDS Director, Dr. Walter Koroshetz, to take immediate ACTIONS to end the crisis of myalgic encephalomyelitis (ME). We need your help! Take action with us: Send Dr Koroshetz a holiday

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Evelien’s Journey to Meet the EU Parliament

Hi everyone! First of all I would like to express my heartfelt thanks to all who contributed to the success of the petition that asks for the EU to fund biomedical research on ME. So many people helped out by writing to their MEPs, translating documents, making phone calls, sharing the news and signing the

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Race, Ethnicity and M.E.: Why We Need to Build a More Inclusive Movement and Why it Matters.

Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of principles and values as well

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Join #MEAction’s Board of Directors

#MEAction is building a global movement to fight for recognition, education and research so that one day, all people with ME will have access to compassionate, effective care. We are currently seeking patients, caregivers, and allies with one or more of the following experiences to join our Board of Directors: Have built and led non-profit

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Are you Disabled? How does ME fit into the Disabled People’s Movement?

Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of principles and values as well

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Inside / Outside Activism: Why We Must Shout in the Streets and Sit at the Table.

Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of principles and values as well

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Why Civil Disagreement and Respect are Essential to the ME Movement

VALUES & POLICY INITIATIVE Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of principles and values as well

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